ArticleHealth expectations : an international journal of public participation in health care and health policy2018
The different perspectives of patients, informal caregivers and professionals on patient involvement in primary care teams. A qualitative study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers and facilitators for shared decision making in older patients with multiple chronic conditions: a systematic review.BMC geriatrics · 2021Pooled it
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- Differential Sources of Distress in Clinical and Research Trainees: A Focus on Work and Role Relationships.Mayo Clinic proceedings. Innovations, quality & outcomes · 2025Article
- Shared decision-making with patients with complex care needs: a scoping review.BMC primary care · 2024Article
- "They forget that I'm a human being"-ward round communication with older patients living with frailty and informal caregivers: a qualitative study.European geriatric medicine · 2024Article
- Shared decision-making endorses intention to follow through treatment or vaccination recommendations: a multi-method survey study among older adults.BMC medical informatics and decision making · 2024Article
- Factors influencing interprofessional collaboration in general and during multidisciplinary team meetings in long-term care and geriatric rehabilitation: a qualitative study.BMC medical education · 2024Article
- Article
- Examining Care Network Characteristics in Older Adults' Relocation to Residential Care Settings.Innovation in aging · 2024Article
- Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Creating space to talk about patients' personal goals: experiences from primary care stakeholders.BMC primary care · 2023Article
- Patients as team members: Factors affecting involvement in treatment decisions from the perspective of patients with a chronic condition.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Patient Satisfaction With Care Is Associated With Better Outcomes in Function and Pain 1 Year After Lumbar Spine Surgery.Journal of patient-centered research and reviews · 2022Article
- Capturing the complexity of healthcare for people with Down syndrome in quality indicators - a Delphi study involving healthcare professionals and patient organisations.BMC health services research · 2020Article
- Elderly patients' decision-making embedded in the social context: a mixed-method analysis of subjective norms and social support.BMC geriatrics · 2020Article
- The different perspectives of patients, informal caregivers and professionals on patient involvement in primary care teams. A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2018Article
- The 4-Circles Tool 2.0-A Tool to Prepare Older Patients for Shared Decision Making: A Developmental and Feasibility Study.MDM policy & practiceArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient involvement in the decision-making process, especially for chronically ill elderly patients, has become an important element of patient-centred primary care in many countries, including the Netherlands. This study openly explores different perspectives of patients, informal caregivers and primary care professionals on patient involvement in primary care team interactions.
methodsSixty-four qualitative semi-structured interviews with chronically ill elderly patients, informal caregivers and primary care professionals from various disciplines. Underpinned by a phenomenology approach, this study used conventional content analysis for data analysis.
resultsParticipants have different views of the roles of patients and informal caregivers in the primary care team and thus different expectations of the extent and level of patient involvement. Three challenges impact patient involvement in the team: (a) patients feel misunderstood and less involved that they would like when professionals take control, (b) patients have to balance the conflicting opinions of different professionals and (c) informal caregivers act undesirably as team leaders due to their own view of the level of patient involvement. DISCUSSION AND
conclusionPatient involvement is formed in complex interactions between patients, informal caregivers and multiple professionals whose perspectives and expectations can be misaligned. Recognizing the value of patients and informal caregivers on the team could help professionals to understand them better and thus limit the likelihood of challenges arising in team interactions.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.