ArticleBMC nursing2018
"I see myself as part of the team" - family caregivers' contribution to safety in advanced home care.
Article in BMC nursing, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Experiences and support needs of patients receiving home mechanical ventilation and their caregivers: a qualitative meta-synthesis.Frontiers in public health · 2026Pooled it
- Older caregivers' responsibilities and strategies for their cohabiting partners living at home-a qualitative systematic literature review.Frontiers in public health · 2025Pooled it
- Article
- Cross-Cultural Adaptation and Initial Psychometric Evaluation of the Adult Carer Quality of Life Questionnaire (AC-QoL) Among Informal Caregivers of Adults Receiving Home Mechanical Ventilation in Poland.Journal of clinical medicine · 2026Article
- Psychosocial Well-Being of Informal Caregivers of Adults Receiving Home Mechanical Ventilation: A Scoping Review.Journal of clinical medicine · 2025Review
- Article
- Concept analysis of patient safety in home care: a hybrid model.BMJ open quality · 2022Article
- Mental health reported in adult invasive home mechanical ventilation through a tracheostomy: A scoping review.International journal of nursing studies advances · 2022Article
- Comparing the quality of care for long-term ventilated individuals at home versus in shared living communities: a convergent parallel mixed-methods study.BMC nursing · 2022Article
- "The Devices Themselves Aren't the Problem"-Views of Patients and Their Relatives on Medical Technical Aid Supply in Home Mechanical Ventilation: An Explorative Qualitative Study.Healthcare (Basel, Switzerland) · 2022Article
- Attitudes of home-visiting nurses toward risk management of patient safety incidents in Japan.BMC nursing · 2022Article
- Exploring the Experiences of Family Caregivers of Children With Special Health Care Needs to Inform the Design of Digital Health Systems: Formative Qualitative Study.JMIR formative research · 2022Article
- How to improve the quality of care for people on home mechanical ventilation from the perspective of healthcare professionals: a qualitative study.BMC health services research · 2021Article
- Adjusting the family's life: A grounded theory of caring for children with special healthcare needs in rural areas, Thailand.PloS one · 2021Article
- [Quality of Care for People with Home Mechanical Ventilation in Germany: A Scoping Review].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2020Article
- Predictive Factors Contributing to Strain and Burden among Jordanian's Caregivers in Chronic Disease.Iranian journal of nursing and midwifery researchArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe use of medical technology and the various contributing and interdepending human factors in home care have implications for patient safety. Although family caregivers are often involved in the provision of advanced home care, there is little research on their contribution to safety. The study aims to explore family caregivers in Home Mechanical Ventilation (HMV) safety experiences and how safety is perceived by them in this context. Furthermore, it seeks to understand how family caregivers contribute to the patients' and their own safety in HMV and what kind of support they expect from their health care team.
methodsAn explorative, qualitative study was applied using elements from grounded theory methodology. Data were collected through individual interviews with 15 family caregivers to patients receiving HMV in two regions in Germany. The audiotaped interviews were then subject to thematic analysis.
resultsThe findings shows that family caregivers contribute to safety in HMV by trying to foster mutual information sharing about the patient and his/her situation, coordinating informally health care services and undertaking compensation of shortcomings in HMV.
conclusionConsequently, family caregivers take on considerable responsibility for patient safety in advanced home care by being actively and constantly committed to safety work
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.