ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2019
Social consequences of advanced cancer in patients and their informal caregivers: a qualitative study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 77 papers, 4 of them syntheses that pooled it.
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The trial behind it
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Who cites it
77 citing papers in PubMed, 4 syntheses or guidelines pooled it, 137 citations in OpenAlex.
- The Role of Social Support in the Experience of Informal Caregivers of Cancer Patients: An Umbrella Review.Psycho-oncology · 2026Pooled it
- Social relationship challenges perceived by cancer patients and survivors: a qualitative meta-synthesis.BMC psychology · 2025Pooled it
- The effectiveness of digital psychosocial interventions on psychological distress, depression, anxiety, and health-related quality of life in patients with gynaecological cancer: a systematic review and meta-analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Pooled it
- Psychosocial functioning in individuals with advanced oesophago-gastric cancer: a mixed methods systematic review.BMC palliative care · 2023Pooled it
- Reach and efficacy of the eHealth application Oncokompas, facilitating partners of incurably ill cancer patients to self-manage their caregiver needs: a randomized controlled trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Trial
- Cost-Utility of the eHealth Application 'Oncokompas', Supporting Incurably Ill Cancer Patients to Self-Manage Their Cancer-Related Symptoms: Results of a Randomized Controlled Trial.Current oncology (Toronto, Ont.) · 2022Trial
- Psychosocial and supportive care in radiation therapy: a qualitative comparison of Norway and Canada.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Prevalence and trends of cancer-related daily life limitations among gastrointestinal cancer survivors.Journal of cancer survivorship : research and practice · 2026Article
- Prevalence and trends of cancer-related daily life limitations among gastrointestinal cancer survivors.Journal of cancer survivorship : research and practice · 2026Article
- Non-pharmacological interventions for informal cancer caregivers: a JBI scoping review and gap analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Relationship Values and Committed Actions Among Couples Coping with Prostate Cancer: A Qualitative Study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Perspectives of patients, partners, primary and hospital-based health care professionals on living with advanced cancer and systemic treatment.Journal of cancer survivorship : research and practice · 2026Article
- Patient-reported outcomes in cancer survivorship: insights from two decades of population-based PROFILES registry research.Journal of cancer survivorship : research and practice · 2026Review
- The unseen symptom: A longitudinal qualitative interview study exploring mobility loss in people with advanced cancer.Palliative medicine · 2026Article
- Initial assessments by psycho-oncologists: predictors of distress and support needs.Journal of cancer research and clinical oncology · 2026Article
- Feasibility Assessment of Telehealth-Based Cancer Pain Management Through Machine Learning: A Prospective Clinical Study.Pain research & management · 2026Article
- Developing and validating a functional social relationships enhancement program for cancer patients: A Delphi method.Journal of education and health promotion · 2026Article
- Article
- Associations of Critical Relationships With Distress and Burden in Caregivers of Patients With Brain Tumor.Psycho-oncology · 2025Article
- Cancer model with moving extinction threshold reproduces real cancer data.Journal of the Royal Society, Interface · 2025Article
17 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeCancer threatens the social well-being of patients and their informal caregivers. Social life is even more profoundly affected in advanced diseases, but research on social consequences of advanced cancer is scarce. This study aims to explore social consequences of advanced cancer as experienced by patients and their informal caregivers.
methodsSeven focus groups and seven in-depth semi-structured interviews with patients (n = 18) suffering from advanced cancer and their informal caregivers (n = 15) were conducted. Audiotapes were transcribed verbatim and open coded using a thematic analysis approach.
resultsSocial consequences were categorized in three themes: "social engagement," "social identity," and "social network." Regarding social engagement, patients and informal caregivers said that they strive for normality by continuing their life as prior to the diagnosis, but experienced barriers in doing so. Regarding social identity, patients and informal caregivers reported feelings of social isolation. The social network became more transparent, and the value of social relations had increased since the diagnosis. Many experienced positive and negative shifts in the quantity and quality of their social relations.
conclusionsSocial consequences of advanced cancer are substantial. There appears to be a great risk of social isolation in which responses from social relations play an important role. Empowering patients and informal caregivers to discuss their experienced social consequences is beneficial. Creating awareness among healthcare professionals is essential as they provide social support and anticipate on social problems. Finally, educating social relations regarding the impact of advanced cancer and effective support methods may empower social support systems and reduce feelings of isolation.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.