Evidence map›Paper›PMID 30207073›Full record

ArticleActa ophthalmologica2019

Quality of life and participation of young adults with a visual impairment aged 18-25 years: comparison with population norms.

Ellen Bernadette Maria Elsman, Gerardus Hermanus Maria Bartholomeus van Rens, Ruth Marie Antoinette van Nispen

Open access · hybridAbstract readComparative StudyValidation Study
In one paragraph

Article in Acta ophthalmologica, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed, 1 pooled it
1.1field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed, 1 synthesis or guideline pooled it, 36 citations in OpenAlex.

  1. The association between visual impairment and fatigue: a systematic review and meta-analysis of observational studies.Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists) · 2019
    Pooled it
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  9. The Psychometric Properties for the VISIONS QL Brief.Healthcare (Basel, Switzerland) · 2025
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  10. Post-traumatic visual sequelae from a forensic medicine perspective: A retrospective analysis of 10 years of data.Ulusal travma ve acil cerrahi dergisi = Turkish journal of trauma & emergency surgery : TJTES · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 1 institution in 1 country.

Ellen Bernadette Maria ElsmanDepartment of Ophthalmology, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.ORCID http://orcid.org/0000-0002-0680-6430
Gerardus Hermanus Maria Bartholomeus van RensDepartment of Ophthalmology, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
Ruth Marie Antoinette van NispenDepartment of Ophthalmology, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.ORCID http://orcid.org/0000-0003-1227-1177
Amsterdam Neuroscience · NL

Funding

Association of Institutions for People with a Visual Impairment (VIVIS)
6 · The paper itself

Abstract

purposeTo compare health-related quality of life and participation of visually impaired young adults with normative groups, and to explore severity of vision loss and its association with participation and quality of life.

methodsYoung adults aged 18-25 years (n = 172) registered at two Dutch low vision rehabilitation organizations completed the Short Form Health Survey (SF-36), EuroQol-5 Dimensions (EQ-5D), Impact on Participation and Autonomy (IPA) and Low Vision Quality of Life questionnaire (LVQOL). EQ-5D and SF-36 scores were compared to age-specific norms. IPA scores were compared to norms of a population having three chronic diseases simultaneously. Linear regression was used to assess the association between severity of vision loss (mild VI, moderate VI and severe VI/blindness), and quality of life and participation.

resultsParticipants scored significantly worse on almost all (sub)scales compared with relevant norms. Effect sizes for the EQ-5D and SF-36 (sub)scales were mostly small; moderate and large effect sizes were found for the IPA. Compared to young adults with mild VI, corrected models showed a significant association between having moderate VI and the physical component score of the SF-36, and between severe VI/blindness and the LVQOL.

conclusionVI has a moderate impact on some aspects of quality of life and a large impact on participation of young adults when compared with relevant normative populations. Severity of vision loss is associated with worse physical functioning and vision-related quality of life. The results contribute to a better understanding of the impact of VI and might lead to improved low vision services.

Indexed as

Quality of LifeSurveys and QuestionnairesVisual AcuityAdolescentAdultCross-Sectional StudiesFemaleHealth StatusHealth SurveysHumansIncidenceMaleNetherlandsPatient ParticipationPersons with Visual DisabilitiesVision, Lowparticipationquality of lifevisual impairmentyoung adults

Identifiers

PMID30207073
PMCPMC6585861
OpenAlexW2892246324

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.