ArticleJournal of developmental and behavioral pediatrics : JDBP2018
Parental Distress and Stress in Association with Health-Related Quality of Life in Youth with Spina Bifida: A Longitudinal Study.
Article in Journal of developmental and behavioral pediatrics : JDBP, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
15 citing papers in PubMed, 18 citations in OpenAlex.
- Self-management in youth with spina bifida: predictors of health and quality of life outcomes.Disability and rehabilitation · 2026Article
- Translation and Validation of the Japanese Version of the University of Washington Caregiver Benefit Scale and the Perception of Benefit-Finding by Caregivers of Children With Spina Bifida and Related Factors: Mixed Methods Research and Comparative Analysis.JMIR pediatrics and parenting · 2026Article
- The Visible Difference Parenting Toolkit: development of an ACT-based intervention to improve the well-being of parents and caregivers of children with appearance-affecting conditions and injuries.Journal of pediatric psychology · 2026Article
- Mediating Effects of Family and Clinical Characteristics on the Quality of Life of Children With Spina Bifida and Their Parents.Journal of advanced nursing · 2026Article
- Social development of girls with a physical disability during adolescence: Parent perspectives.Rehabilitation psychology · 2026Article
- Factors Affecting the Quality of Life of Parents of Children With Spina Bifida: The Mediating Role of Family Resilience.Journal of advanced nursing · 2026Observational
- Family factors as moderators of the association between specific cognitive domains and psychosocial, academic, and adaptive functioning outcomes in youth with spina bifida.Journal of pediatric psychology · 2025Article
- Contextual predictors of self-management and independence trajectories in adolescents and young adults with spina bifida.Developmental medicine and child neurology · 2024Article
- Trajectories of self-management and independence in youth with spina bifida: Family-related predictors of growth.Research in nursing & health · 2024Article
- Article
- The role of parental health and distress in assessing children's health status.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- A Preliminary Study of COVID-19-related Stressors, Parenting Stress, and Parental Psychological Well-being Among Parents of School-age Children.Journal of child and family studies · 2022Article
- The Challenges of Measuring and Valuing Quality of Life in Preschool Children: A Retrospective Review of NICE Appraisals.Children (Basel, Switzerland) · 2021Article
- The Adolescent/Young Adult Self-Management and Independence Scale (AMIS-II): Expanding evidence for validity and reliability.Journal of pediatric rehabilitation medicine · 2021Article
- Pathways by which Maternal Factors are Associated With Youth Spina Bifida-Related Responsibility.Journal of pediatric psychology · 2020Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
objectiveThis study examined associations between 3 distinct parent factors (parent personal distress, parenting stress, and spina bifida (SB)-specific parenting stress) and youth and parent proxy reports of youth health-related quality of life (HRQOL) over time.
methodParticipants were recruited as part of a longitudinal study, and data were collected at 3 time points, spaced 2 years apart. Parents and youth completed questionnaires, and youth completed neuropsychological assessment tasks to determine youth intelligence quotient during home visits.
resultsAnalyses revealed that higher levels of maternal SB-specific parenting stress were related to lower levels of youth-reported HRQOL at time 1. Other parent factors were not associated with youth report of HRQOL at the earlier time points, although higher levels of maternal SB-specific parenting stress and paternal parenting stress were associated with lower levels of youth HRQOL at time 3. For mothers and fathers, increased parent personal distress, parenting stress, and SB-specific parenting stress were associated with decreased proxy report of youth HRQOL. Of these three parent factors, SB-specific parenting stress was consistently the most strongly associated with parent proxy-report of youth HRQOL.
conclusionParenting stress and distress are important targets for interventions, and these interventions may improve youth outcomes, especially as youth age. Future research is needed to identify other factors influencing youth HRQOL over time.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.