Evidence map›Paper›PMID 30202926›Full record

ReviewTranslational behavioral medicine2018

Applying a community-based participatory research framework to patient and family engagement in the development of patient-centered outcomes research and practice.

Simona C Kwon, Shiv Darius Tandon, Nadia Islam, Lindsey Riley, Chau Trinh-Shevrin

Registry-linked trialAbstract readReview
In one paragraph

Review in Translational behavioral medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07074145 (WEAVE NM Project), which is not on this map. Cited by 74 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
74citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07074145 narecruitingnot on this mapstarted 2025, after this paper: background citation

WEAVE NM Project: Heart Health and Nutrition for Life (HHNL)

TypeinterventionalSponsorUniversity of New MexicoRan2025 to 2027Enrolled240ConditionsHypertensionArmsHeart Health and Nutrition for Life (HHNL), Self-Measured Blood Pressure
3 · Its place in the literature

Who cites it

74 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.Health expectations : an international journal of public participation in health care and health policy · 2019
    Pooled it
  3. Trial
  4. Article
  5. Article
  6. Observational
  7. Article
  8. Article
  9. Article
  10. Review
  11. Article
  12. A scoping review of Indigenous community-based research practices, guidelines, and ethical standards.Canadian journal of public health = Revue canadienne de sante publique · 2026
    Article
  13. Training Adolescents and Young Adults to be Partners in Research: Co-Creating the Young Patients' Autoimmune Research and Empowerment Alliance.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  14. Article
  15. Article
  16. Article
  17. Review
  18. Article
  19. Article
  20. Article

14 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Simona C KwonDepartment of Population Health, NYU School of Medicine, New York, NY, USA.
Shiv Darius TandonDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Nadia IslamDepartment of Population Health, NYU School of Medicine, New York, NY, USA.
Lindsey RileyDepartment of Population Health, NYU School of Medicine, New York, NY, USA.
Chau Trinh-ShevrinDepartment of Population Health, NYU School of Medicine, New York, NY, USA.

Funding

Project-005UL1TR001445 · NCATS · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI BREDELLA, MIRIAM ANTOINETTE, HOCHMAN, JUDITH S · 2015 to 2025
$103.5M
Research Training and Education CoreP60MD000538 · NIMHD · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI TRINH-SHEVRIN, CHAU · 2003 to 2017
$21.2M
Scaling Community-Clinical Linkage Models to Address Diabetes and Hypertension Disparities in the Southeastern U.S.U54MD000538 · NIMHD · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI KWON, SIMONA, TRINH-SHEVRIN, CHAU · 2017 to 2022
$11.3M
New York University, City University of New York Health Promotion & Prevention ReU48DP005008 · DP · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI THORPE, LORNA, TRINH-SHEVRIN, CHAU · 2014 to 2018
$6.9M
ACL HHS U48DP005008NCATS NIH HHS UL1 TR001445NIMHD NIH HHS P60 MD000538NIMHD NIH HHS U54 MD000538
6 · The paper itself

Abstract

There has been increasing recognition of the need to engage patients, families, and other patient stakeholders in research. This article seeks to provide understanding and examples of how to apply core principles of community-based participatory research (CBPR) in developing patient-centered outcomes research (PCOR) that can impact clinical and public health practice. Authors review CBPR principles and demonstrate how to translate them into effective PCOR strategies. Common themes of CBPR principles and PCOR strategies are related to: (a) fostering joint ownership in the identification of health priorities, the development and evaluation of research strategies and their design, and the dissemination of findings; (b) a keen recognition and appreciation for the importance of stakeholder-driven priorities, research, and solutions; (c) building capacity of both stakeholders and researchers to engage in research collaboratively; and (d) recognizing that conducting the research is not the endpoint but continues on with a commitment to dissemination, spread, adoption and sustainability. The authors highlight the specific strategies in which these CBPR principles can be translated for use in engaging patients and families, and including other stakeholders such as care providers, community partner organizations, health systems, and insurers, in the research process to ensure the development of PCOR.

Indexed as

FamilyPatient Outcome AssessmentCommunity-Based Participatory ResearchHumansPatient Participation

Identifiers

PMID30202926
PMCPMC6128966

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.