Evidence map›Paper›PMID 30202397›Full record

ArticleGlobal bioethics = Problemi di bioetica2018

"Not just dogs, but rabid dogs": tensions and conflicts amongst research volunteers in Malawi.

Mackwellings Phiri, Kate Gooding, Deborah Nyirenda, Rodrick Sambakunsi, Moses Kelly Kumwenda, Nicola Desmond

Open access · goldAbstract read
In one paragraph

Article in Global bioethics = Problemi di bioetica, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
0.4field-weighted citation impact, top 37% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 21 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 2 countries.

Mackwellings PhiriMalawi Liverpool Welcome Trust Clinical Research Programme, Blantyre, Malawi.ORCID 0000-0001-5765-6340
Kate GoodingMalawi Liverpool Welcome Trust Clinical Research Programme, Blantyre, Malawi.ORCID 0000-0003-4926-0287
Deborah NyirendaMalawi Liverpool Welcome Trust Clinical Research Programme, Blantyre, Malawi.ORCID 0000-0002-5867-4687
Rodrick SambakunsiMalawi Liverpool Welcome Trust Clinical Research Programme, Blantyre, Malawi.
Moses Kelly KumwendaMalawi Liverpool Welcome Trust Clinical Research Programme, Blantyre, Malawi.ORCID 0000-0003-3091-7330
Nicola DesmondMalawi Liverpool Welcome Trust Clinical Research Programme, Blantyre, Malawi.
University of Liverpool · GB

Funding

Wellcome Trust
6 · The paper itself

Abstract

Building trust between researchers and communities involved in research is one goal of community engagement. This paper examines the implications of community engagement for trust within communities, including trust among community volunteers who assist with research and between these volunteers and other community members. We describe the experiences of two groups of community volunteers recruited as part of an HIV and TB intervention trial in Malawi: cluster representatives, recruited both to act as key informants for TB suspects and mortality reporting and to identify and report community concerns, and community counsellors, recruited to provide semi-supervised HIV self-testing. We examine tensions experienced due to playing multiple roles, and the implications of volunteer responsibilities for short- and long-term community relationships. Data was collected through a workshop, in-depth interviews and focus group discussions with volunteers and community members. While the volunteer system initially enhanced trust among volunteers and with the community, relationships deteriorated when cluster representatives assumed an additional supervisory role part-way through the trial. Combined with challenging recruitment targets and unequal power relations between volunteers, this new role damaged trust, with implications for volunteer well-being and social relationships. These experiences suggest researchers should consider potential social implications when designing community engagement systems.

Indexed as

community counsellorcommunity engagementcommunity representativeHIV self-testingTrust

Identifiers

PMID30202397
PMCPMC6127836
OpenAlexW2891864872

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.