Evidence map›Paper›PMID 30201006›Full record

ArticleOrphanet journal of rare diseases2018

Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta.

Brigitte Mueller, Raoul Engelbert, Frances Baratta-Ziska, Bart Bartels, Nicole Blanc, Evelise Brizola, Paolo Fraschini, Claire Hill, Caroline Marr, Lisa Mills and 8 more

Open access · goldAbstract readConsensus Statement
In one paragraph

Article in Orphanet journal of rare diseases, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
41citing papers in PubMed, 1 pooled it
5.8field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

41 citing papers in PubMed, 1 synthesis or guideline pooled it, 92 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Article
  4. Bridging the knowledge gap in rare bone disorders: insights from the APCO Asia-Pacific Rare Bone Disorders Engagement (ASPIRE) survey.Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA · 2025
    Article
  5. Osteogenesis imperfecta and the family: A qualitative analysis of the experiences of family and caregivers.Families, systems & health : the journal of collaborative family healthcare · 2025
    Article
  6. Review
  7. Article
  8. Article
  9. Article
  10. Review
  11. Review
  12. Review
  13. Article
  14. Article
  15. Article
  16. Article
  17. Evaluation of functioning and associated factors in children and adolescents with osteogenesis imperfecta.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo · 2024
    Article
  18. Early Life Management of Osteogenesis Imperfecta.Current osteoporosis reports · 2023
    Review
  19. Article
  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors at 13 institutions in 11 countries.

Brigitte MuellerUnireha, University of Cologne, Center of Prevention and Rehabilitation, Cologne, Germany.
Raoul EngelbertACHIEVE, Center for Applied Research, Faculty of Health, University of Applied Sciences Amsterdam, Amsterdam, The Netherlands.
Frances Baratta-ZiskaHospital for Special Surgery, NYC, NY, USA.
Bart BartelsChild development and exercise center, Wilhelmina´s Children Hospital, University Medical Center Utrecht, Utrecht, The Netherlands.
Nicole BlancChildren's Hospital, Toulouse, France.
Evelise BrizolaMedical Genetics Service, Hospital de Clinicas de Porto Alegre, Porto Alegre, Brazil.
Paolo FraschiniIRCCS Eugenio Medea, Bosisio Parini (LC), Italy.
Claire HillSheffield Children's NHS Foundation Trust, Sheffield, UK.
Caroline MarrSheffield Children's NHS Foundation Trust, Sheffield, UK.
Lisa MillsBristol Royal Hospital for Children, University Hospitals Bristol NHS Foundation Trust, Bristol, UK.
Kathleen MontpetitShriners Hospital for Children, Montreal, Quebec, Canada.
Verity PaceyThe Children's Hospital at Westmead, Sydney, Australia.
Miguel Rodriguez MolinaAHUCE and Fundacion AHUCE, Madrid, Spain.
Marleen SchuuringChild development and exercise center, Wilhelmina´s Children Hospital, University Medical Center Utrecht, Utrecht, The Netherlands.
Chantal VerhilleUniversity of Leuven, Leuven, Belgium.
Olga de VriesNational Resource center for rare disorders. Part of the National Advisory Unit on Rare Disorders (NKSD), Sunnaas Rehabilitation Hospital, Nesodden, Norway.
Eric Hiu Kwong YeungThe University of Hong Kong, Hong Kong, China.
Oliver SemlerUniversity of Cologne, Children's Hospital, Kerpenerstraße 62, 50931, Cologne, Germany. joerg.semler@uk-koeln.de.ORCID 0000-0003-0029-7556
Sheffield Children's NHS Foundation Trust · GBUniversity Medical Center Utrecht · NLUniversity of Cologne · DEAmsterdam University of Applied Sciences · NLChildren's Hospital at Westmead · AUHospital de Clínicas de Porto Alegre · BRHospital for Special Surgery · USIRCCS Eugenio Medea · ITKU Leuven · BEShriners Hospitals for Children - Canada · CASunnaas sykehus · NOUniversity Hospitals Bristol NHS Foundation Trust · GBUniversity of Hong Kong · HK

Funding

Care4Brittle bones foundation 2016-0008
6 · The paper itself

Abstract

On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0-18 years with osteogenesis imperfecta.

Indexed as

AdolescentChildChild, PreschoolHumansOccupational TherapistsOccupational TherapyOsteogenesis ImperfectaPhysical TherapistsQuality of LifeSurveys and QuestionnairesMobilityOccupational therapyOsteogenesis imperfectaPhysiotherapyRehabilitation

Identifiers

PMID30201006
PMCPMC6131938
OpenAlexW2892180233

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.