ArticleJournal of diabetes science and technology2019
Twitter Analysis of #OpenAPS DIY Artificial Pancreas Technology Use Suggests Improved A1C and Quality of Life.
Article in Journal of diabetes science and technology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03720080 (Observational Study to Compare Adaptions of Basal Rate Doses Using Self-build OpenAPS Artificial Pancreas Compared With Medtronic 670G Hybrid Closed Loop in Type 1 Diabetes), which is not on this map. Cited by 45 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Observational Study to Compare Adaptions of Basal Rate Doses Using Self-build OpenAPS Artificial Pancreas Compared With Medtronic 670G Hybrid Closed Loop in Type 1 Diabetes
Who cites it
45 citing papers in PubMed, 88 citations in OpenAlex.
- Utilization of Netnography as a Health Care Research Methodology: Scoping Review.Journal of medical Internet research · 2025Article
- Understanding Device Integrations Within Diabetes Apps: Mixed Methods Analysis of App Features and User Reviews.JMIR diabetes · 2025Article
- Examining the Emotional and Physical Health Impact in Users of Open-Source Automated Insulin Delivery and Sources of Support: Qualitative Analysis of Patient Narratives.Journal of medical Internet research · 2025Article
- Use of Automated Insulin Delivery in Pregnancies Complicated by Type 1 Diabetes.TouchREVIEWS in endocrinology · 2024Article
- Psychosocial Outcomes Among Users and Nonusers of Open-Source Automated Insulin Delivery Systems: Multinational Survey of Adults With Type 1 Diabetes.Journal of medical Internet research · 2023Article
- Article
- A Mapping Review of Netnography in Nursing.Qualitative health research · 2023Review
- Article
- Impact of glycaemic technologies on quality of life and related outcomes in adults with type 1 diabetes: A narrative review.Diabetic medicine : a journal of the British Diabetic Association · 2023Review
- Online Ethnography for People With Chronic Conditions: Scoping Review.Journal of medical Internet research · 2022Article
- Improved Glycemia and Quality of Life Among Loop Users: Analysis of Real-world Data From a Single Center.JMIR diabetes · 2022Article
- Multi-Timescale Rhythmicity of Blood Glucose and Insulin Delivery Reveals Key Advantages of Hybrid Closed Loop Therapy.Journal of diabetes science and technology · 2022Article
- Navigating Diabetes Online Communities in Clinical Practice.Journal of diabetes science and technology · 2022Review
- Article
- User and Healthcare Professional Perspectives on Do-It-Yourself Artificial Pancreas Systems: A Need for Guidelines.Journal of diabetes science and technology · 2022Article
- Mapping the Landscape of Do-it-Yourself Medicine.Citizen science : theory and practice · 2022Article
- Efficient Closed Loop Simulation of Do-It-Yourself Artificial Pancreas Systems.Journal of diabetes science and technology · 2022Article
- A scoping review of Do-It-Yourself Automated Insulin Delivery system (DIY AID) use in people with type 1 diabetes.PloS one · 2022Article
- Open-source automated insulin delivery: international consensus statement and practical guidance for health-care professionals.The lancet. Diabetes & endocrinology · 2022Review
- Current Advances of Artificial Pancreas Systems: A Comprehensive Review of the Clinical Evidence.Diabetes & metabolism journal · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient-driven innovation in diabetes management has resulted in a group of people with type 1 diabetes who choose to build and share knowledge around a do-it-yourself (DIY) open source artificial pancreas systems (OpenAPS). The purpose of this study was to examine Twitter data to understand how patients, caregivers, and care partners perceive OpenAPS, the personal and emotional ramifications of using OpenAPS, and the influence of OpenAPS on daily life.
methodsQualitative netnography was used to analyze #OpenAPS on Twitter over a two-year period.
resultsThere were 328 patients, caregivers, and care partners who generated 3347 tweets. One overarching theme, OpenAPS changes lives, and five subthemes emerged from the data: (1) OpenAPS use suggests self-reported A1C and glucose variability improvement, (2) OpenAPS improves sense of diabetes burden and quality of life, (3) OpenAPS is perceived as safe, (4) patient/caregiver-provider interaction related to OpenAPS, and (5) technology adaptation for user needs.
conclusionsAs users of a patient-driven technology, OpenAPS users are self-reporting improved A1C, day-to-day glucose levels, and quality of life. Safety features important to individuals with diabetes are perceived to be embedded into OpenAPS technology. Twitter analysis provides insight on a patient population driving an innovative solution to improve their quality of diabetes care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.