ArticleArchives of physical medicine and rehabilitation2019
The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury.
Article in Archives of physical medicine and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
38 citing papers in PubMed.
- Completion and Compliance Rates for an Intensive mHealth Study Design to Promote Self-Awareness and Self-Care Among Care Partners of Individuals With Traumatic Brain Injury: Secondary Analysis of a Randomized Controlled Trial.JMIR mHealth and uHealth · 2025Trial
- Improving Outcomes for Care Partners of Individuals With Traumatic Brain Injury: Results for a mHealth Randomized Control Trial of the CareQOL App.Archives of physical medicine and rehabilitation · 2025Trial
- An app-based just-in-time-adaptive self-management intervention for care partners: The CareQOL feasibility pilot study.Rehabilitation psychology · 2022Trial
- Understanding and Assessing Health-Related Quality of Life in Caregivers of Individuals With Traumatic Brain Injury and Comorbid Posttraumatic Stress Disorder.Archives of physical medicine and rehabilitation · 2026Article
- A comprehensive parent training program for parents of neurodivergent children with pathological demand avoidance: The Paradigm Shift ProgramPediatric investigation · 2026Article
- Qualitative Analysis of User Experiences of a mHealth Self-Care Intervention for Care Partners of Individuals with Traumatic Brain Injury.Archives of rehabilitation research and clinical translation · 2026Article
- The TBI-AD/ADRD Caregiver Support Intervention (TACSI): Protocol of a Pilot Randomized Controlled Trial Evaluation of a Remote Intervention for Family Caregivers.JMIR research protocols · 2026Article
- Determination of Health Concepts in β-Propeller Protein-Associated Neurodegeneration.Journal of child neurology · 2025Article
- The Family Wellness Program: a bench to bedside translation of behavioral and social science research into a clinical program for intimate partners of warfighters following traumatic brain injury.Frontiers in health services · 2025Review
- Efficacy and Implementation Planning Across the Veterans Affairs Polytrauma System of Care: Protocol for the REACH Intervention for Caregivers of Veterans and Service Members With Traumatic Brain Injury.JMIR research protocols · 2024Article
- Health-related quality of life among inpatients suffering from Traumatic brain injury in an urban setting in Vietnam.PloS one · 2024Article
- The Dosing of Mobile-Based Just-in-Time Adaptive Self-Management Prompts for Caregivers: Preliminary Findings From a Pilot Microrandomized Study.JMIR formative research · 2023Article
- Developing a Digital Health Intervention for Conversation Skills After Brain Injury (convers-ABI-lity) Using a Collaborative Approach: Mixed Methods Study.Journal of medical Internet research · 2023Article
- The reliability and validity of the TBI-CareQOL system in four diverse caregiver groups.Journal of patient-reported outcomes · 2023Article
- Article
- Caregiver sleep impairment and service member and veteran adjustment following traumatic brain injury is related to caregiver health-related quality of life.Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine · 2022Article
- Pain interference and health-related quality of life in caregivers of service members and veterans with traumatic brain injury and mental health comorbidity.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Article
- An App-Based Just-in-Time Adaptive Self-management Intervention for Care Partners (CareQOL): Protocol for a Pilot Trial.JMIR research protocols · 2021Article
- Predicting the Health-related Quality of Life in Patients Following Traumatic Brain Injury.Surgery journal (New York, N.Y.) · 2021Article
Corrections and comments
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Authors and funding
13 authors.
Funding
Abstract
objectiveTo develop a new measurement system, the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL), that can evaluate both general and caregiving-specific aspects of health-related quality of life (HRQOL) in caregivers of persons with traumatic brain injury (TBI).
designNew item pools were developed and refined using literature reviews, qualitative data from focus groups, and cognitive debriefing with caregivers of civilians and service members/veterans with TBI, as well as expert review, reading level assessment, and translatability review; existing item banks and new item pools were assessed using an online data capture system. Exploratory and confirmatory factor analysis, item response theory, and differential item functioning analyses were utilized to develop new caregiver-specific item banks. Known-groups validity was examined using a series of independent samples t tests comparing caregivers of low-functioning vs high-functioning persons with TBI for each of the new measures, as well as for 10 existing Patient-Reported Outcomes Measurement Information System (PROMIS) measures.
settingThree TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility.
participantsCaregivers (N=560) of civilians (n=344) or service members/veterans with TBI (n=216).
interventionsNot applicable.
main outcome measuresThe TBI-CareQOL measurement system (including 5 new measures and 10 existing PROMIS measures).
resultsExploratory and confirmatory factor analysis, item response theory, and differential item functioning analyses supported the development of 5 new item banks for Feelings of Loss-Self, Feelings of Loss-Person with TBI, Caregiver-Specific Anxiety, Feeling Trapped, and Caregiver Strain. In support of validity, individuals who were caring for low-functioning persons with TBI had significantly worse HRQOL than caregivers that were caring for high-functioning persons with TBI for both the new caregiver-specific HRQOL measures, and for the 10 existing PROMIS measures.
conclusionsThe TBI-CareQOL includes both validated PROMIS measures and newly developed caregiver-specific measures. Together, these generic and specific measures provide a comprehensive assessment of HRQOL for caregivers of civilians and service members/veterans with TBI.
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Registered trials
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