ArticleJournal of empirical research on human research ethics : JERHRE2018
Perceived Risks and Benefits in IPV and HIV Research: Listening to the Voices of HIV-Positive African American Women.
Article in Journal of empirical research on human research ethics : JERHRE, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review and meta synthesis of barriers and facilitators to Black women's participation in healthcare research.BMC medical research methodology · 2026Pooled it
- Navigating technology-facilitated abuse: A participatory action research study with young adults living with HIV and key populations in Kenya.PLOS global public health · 2026Article
- Sarah Waller's Help-Seeking Model: Understanding African American Women Intimate Partner Violence Survivors' Help-seeking Process.Journal of interpersonal violence · 2023Article
- Article
- Medical Mistrust, COVID-19 Stress, and Intent to Vaccinate in Racial-Ethnic Minorities.Behavioral sciences (Basel, Switzerland) · 2022Article
- Testimonies and Healing: Anti-oppressive Research with Black Women and the Implications for Compassionate Ethical Care.The Hastings Center report · 2022Article
- Considerations for Increasing Racial, Ethnic, Gender, and Sexual Diversity in HIV Cure-Related Research with Analytical Treatment Interruptions: A Qualitative Inquiry.AIDS research and human retroviruses · 2022Article
- Risks and Benefits of Adolescent Girls' Participation in Online Sexting Survey Research.Archives of sexual behavior · 2021Article
- Voice, Counterspaces, and Ethical Care in Research With Black Women With Trauma and Incarceration Histories.Health education & behavior : the official publication of the Society for Public Health Education · 2021Article
- Examining the Effect of Internalized HIV-Related Stigma on Perceptions of Research Participation among HIV-Positive African American Women.Translational issues in psychological science · 2020Article
- Web-based and mHealth interventions for intimate partner violence prevention: a systematic review protocol.BMJ open · 2019Article
- Perceptions of HIV Research Participation Among Gay, Bisexual, and Other Men who Have Sex with Men and Transgender and Nonbinary Adults: Results From a Midwest Pride Event.Journal of empirical research on human research ethics : JERHREArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
African American women living with HIV were asked to reflect on the perceived risks and benefits of research participation after completing a study examining socially sensitive issues in their lives, including intimate partner violence (IPV) and HIV. Administration of standardized quantitative instruments yielded positive responses to the research experience. However, qualitative assessments of perceived risks and benefits revealed more nuanced responses. For example, confidentiality concerns were more prominent in open-ended responses as was participants' positive attitudes toward monetary compensation. In addition, some women reported that study participation provided them with new insights about their experiences with IPV. Findings suggest that empirical studies on research protections involving potentially distressing and socially sensitive experiences with vulnerable populations require both quantitative and qualitative assessments of perceived risks and benefits. We discuss implications of our findings for ethics practices in trauma-related research among populations with multiple social vulnerabilities.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.