ArticleInternational journal of qualitative studies on health and well-being2018
Family members´ experiences of the end-of-life care environments in acute care settings - a photo-elicitation study.
Article in International journal of qualitative studies on health and well-being, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed, 29 citations in OpenAlex.
- Visually representing total pain at the end of life through photovoice.Frontiers in sociology · 2026Article
- Emergency nurses' experiences of caring for brought-in-dead persons and their relatives-a qualitative study.Journal of advanced nursing · 2025Article
- Expectation, emotion and the built environment: experiences of occupying hospital spaces as a loved one nears the end of life.Medical humanities · 2025Article
- Family-Centered Care Experiences in Elderly with Chronic Diseases in Communities: Qualitative Study of Patients, Families, Nurses, and Volunteers.Health equity · 2024Article
- The viability and appropriateness of using visual methods in end of life research to foreground the experiences of people affected by financial hardship and deprivation.Palliative medicine · 2023Article
- Support received by family members before, at and after an ill person's death.BMC palliative care · 2021Article
Corrections and comments
- Erratum issuedCorrection.2018
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThis article explores experiences of the acute-care environment as a setting for end-of-life (EoL) care from the perspective of family members of a dying person.
methodWe used participant-produced photographs in conjunction with follow-up interviews with nine family members to persons at the EoL, cared for in two acute-care settings.
resultsThe interpretive description analysis process resulted in three constructed themes-Aesthetic and un-aesthetic impressions, Space for privacy and social relationships, and Need for guidance in crucial times. Aspects of importance in the physical setting related to aesthetics, particularly in regard to sensory experience, and to a need for enough privacy to facilitate the maintenance of social relationships. Interactions between the world of family members and that of professionals were described as intrinsically related to guidance about both the material and immaterial environment at crucial times.
conclusionThe care environment, already recognized to have an impact in relation to patients, is concluded to also affect the participating family members in this study in a variety of ways.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.