ArticleJournal of genetic counseling2018
Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana.
Article in Journal of genetic counseling, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A qualitative evidence synthesis on perinatal screening for sickle cell disease in high-burden countries.BMC global and public health · 2026Pooled it
- Clinical and Genetic Predictors of Sickle Cell Nephropathy: A Global Systematic Review.Omics : a journal of integrative biology · 2025Pooled it
- Evaluation of The Use of Hydroxyurea in Treating Children With Sickle Cell Anemia in Central Africa's Rural Area.EJHaem · 2026Article
- Patient, parent and provider perspectives on sickle cell disease genetics research in Jamaica.PLOS global public health · 2026Article
- Exploring the quality of life of caregivers of children with sickle cell disease in a secondary health facility in Ghana.Ghana medical journal · 2025Article
- Regional dynamics of zoonotic risk perception and wildlife use in Ghana.Journal of ethnobiology and ethnomedicine · 2025Article
- Knowledge of sickle cell disease and associated factors among undergraduate students at Makerere University: a cross-sectional study.African health sciences · 2025Article
- Fertility Care in Low and Middle Income Countries: Policy, Politics, and Macro-Level Influences on Implementation in Uganda.Reproduction & fertility · 2025Article
- Article
- Statistical exploration of factors associated with birth of children having sickle cell traits among reproductive-age women in Nigeria.BMC public health · 2025Article
- Caregiver acceptability of seasonal malaria chemoprevention in two districts in the Upper West region, Ghana: a cross-sectional study.Malaria journal · 2025Article
- Sickle cell disease awareness and perception among Christian religious leaders in Accra Metropolis: a qualitative study.Journal of community genetics · 2024Article
- Review
- A qualitative study on stigma experienced by young adults living with sickle cell disease in Accra, Ghana.International health · 2023Article
- Determinants of retention in care of newborns diagnosed with sickle cell disease in Liberia: Results from a mixed-methods study of caregivers.PLOS global public health · 2023Article
- The perception of parents with a child with sickle cell disease in Ghana towards prenatal diagnosis.Journal of community genetics · 2022Article
- Global geographic differences in healthcare utilization for sickle cell disease pain crises in the CASiRe cohort.Blood cells, molecules & diseases · 2021Article
- The Crisis of Sickle Cell Disease in Africa from Insights into Primary Prevention in Ghana and Nigeria: Notes from the Field.Journal of immigrant and minority health · 2021Article
- Perspectives on Building Sustainable Newborn Screening Programs for Sickle Cell Disease: Experience from Tanzania.International journal of neonatal screening · 2021Article
- Engaging publics in biobanking and genetic research governance - a literature review towards informing practice in India.Wellcome open research · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
Abstract
Sickle cell disease (SCD) is highly prevalent in Africa with a significant public health burden for under-resourced countries. We employed qualitative research methods to understand the ethical, legal, and social implications of conducting genomic research in SCD under the Human Heredity and Health in Africa (H3Africa) initiative. The present study focused on religious and cultural aspects of SCD with the view to identifying beliefs and attitudes relevant to public health interventions in Ghana. Thematic analyses from individual and group interviews revealed six key areas of importance, namely, reliance on a supreme being; religion as a disruptive influence on health behaviors; role of religious leaders in information sharing and decision-making; social, religious, and customary norms; health and religious/supernatural beliefs; and need for social education and support through church and community. Findings suggest that public health programs in Ghana should not only aim at increasing knowledge and awareness about SCD and its management but also create an understanding of the relevance of genomics and alternative technological advancement to diagnosis and ethical decision-making around available options for health seeking. Future research should engage communities to help address the ethical and social implications of a persuasive religious influence on SCD-related health decisions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.