Evidence map›Paper›PMID 30168165›Full record

ArticleJournal of advanced nursing2019

Professional and family caregivers' attitudes towards involuntary treatment in community-dwelling people with dementia.

Angela M H J Mengelers, Michel H C Bleijlevens, Hilde Verbeek, Elizabeth Capezuti, Frans E S Tan, Jan P H Hamers

Open access · hybridAbstract read
In one paragraph

Article in Journal of advanced nursing, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
4.1field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 26 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 4 countries.

Angela M H J MengelersFaculty of Health, Medicine and Lifesciences, CAPHRI, Maastricht University, Maastricht, The Netherlands.ORCID http://orcid.org/0000-0002-0010-9458
Michel H C BleijlevensFaculty of Health, Medicine and Lifesciences, CAPHRI, Maastricht University, Maastricht, The Netherlands.
Hilde VerbeekFaculty of Health, Medicine and Lifesciences, CAPHRI, Maastricht University, Maastricht, The Netherlands.
Elizabeth CapezutiHunter College and the Graduate Center of City, University of New York, New York, United States.
Frans E S TanFaculty of Health, Medicine and Lifesciences, CAPHRI, Maastricht University, Maastricht, The Netherlands.
Jan P H HamersFaculty of Health, Medicine and Lifesciences, CAPHRI, Maastricht University, Maastricht, The Netherlands.
Maastricht University · NLThe Graduate Center, CUNY · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimsThe aim of this study was to gain insight into professional and family caregivers' attitudes towards involuntary treatment in community-dwelling people with dementia (PwD).

backgroundThe number of PwD with complex care needs living at home is increasing rapidly. In some situations, caregivers provide care against the will of PwD, referred to as involuntary treatment, which includes non-consensual care, psychotropic medication and physical restraints.

designA cross-sectional study.

methodsA total of 228 professional (nursing staff, general practitioners (GPs) and other healthcare professionals such as physical therapists and psychologists) and 77 family caregivers of PwD completed the Maastricht Attitude Questionnaire-Home Care. This questionnaire measures attitudes towards involuntary treatment and perceived restrictiveness of and experienced discomfort in using involuntary treatment. Data were collected in the Netherlands between June and November 2016.

resultsFamily caregivers and GPs had more positive attitudes towards involuntary treatment than nursing staff and other healthcare professionals, indicating that they are more accepting of involuntary treatment. A more positive attitude was associated with higher perceived caregiver burden and being a family caregiver. Family caregivers and GPs found the use of involuntary treatment less restrictive and indicated feeling more comfortable when using these measures.

conclusionIt is important to account for the differences in attitudes and foster dialogue among professional and family caregivers to find common ground about alternatives to involuntary treatment. These results will inform the development of an intervention that aims to prevent involuntary treatment in home care.

Indexed as

AdultAgedAged, 80 and overAttitude of Health PersonnelCaregiversCross-Sectional StudiesDementiaFamilyFemaleFrail ElderlyHealth PersonnelHumansIndependent LivingInvoluntary TreatmentMaleMiddle Agedcaregiversdementiahome careinvoluntary treatmentnon-consensual carenursingphysical restraintspsychotropic medication

Identifiers

PMID30168165
PMCPMC7379622
OpenAlexW2889363294

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.