Evidence map›Paper›PMID 30160003›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2018

Measuring therapeutic relationship in the care of patients with haemophilia: A scoping review.

Erin McCabe, Maxi Miciak, Liz Dennett, Patricia Manns, Christine Guptill, Jeremy Hall, Douglas P Gross

Abstract readScoping Review
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Measuring therapeutic relationship in the care of patients with haemophilia: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2018
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Erin McCabeFaculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB, Canada.ORCID 0000-0003-3171-3065
Maxi MiciakFaculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB, Canada.
Liz DennettJohn W. Scott Health Sciences Library, University of Alberta, Edmonton, AB, Canada.
Patricia MannsFaculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB, Canada.
Christine GuptillFaculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB, Canada.
Jeremy HallDepartment of Biomedical Engineering, University of Alberta, Edmonton, AB, Canada.
Douglas P GrossFaculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveWe conducted a scoping review of the tools used to measure therapeutic relationship in patients with haemophilia.

backgroundHaemophilia is an inherited bleeding disorder caused by a deficiency of a clotting factor in the blood. Therapeutic relationship is foundational to the management of patients with chronic diseases like haemophilia. A reliable and valid measurement tool for assessing therapeutic relationship is needed to evaluate the quality of care received by these patients, and to rigorously study the association between therapeutic relationship and the outcomes of treatment.

methodsWe adopted the Arksey and O'Malley framework for scoping studies. The following electronic databases were searched for studies that measured a construct related to therapeutic relationships in haemophilia care: MEDLINE, EMBASE, CINAHL, PsycINFO and Scopus. We inventoried these studies, identified the measurement tools used, and described each tool by purpose, content, measurement properties and target population. We identified gaps in the current evidence and directions for future research.

resultsThere were 253 unique records retrieved in the search, and twenty studies were deemed relevant. Ten measurement tools were identified. None of the tools measured therapeutic relationship as a single entity; however, six tools measured constructs considered part of patient-provider relationship (eg trust, communication, working alliance). There has been little validation testing of these tools in haemophilia patient populations.

conclusionsThere is a need for a validated tool for measuring therapeutic relationship in the care of patients with haemophilia. This review provides a foundation for future research in this area.

Indexed as

Chronic DiseaseHemophilia APhysician-Patient RelationsQuality of Health CareHumansPatient Satisfactionblood coagulation disorders, inheritedhealth-care surveyspatient outcome assessmentpatient participationpatient-reported outcome measuresprofessional-patient relationsvalidation studies

Identifiers

PMID30160003
PMCPMC6250875

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.