Evidence map›Paper›PMID 30144005›Full record

ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2019

Improving Research Literacy in Diverse Minority Populations with a Novel Communication Tool.

Melissa A Simon, Rodney Haring, Elisa M Rodriguez, Evelyn González, Judith S Kaur, Marcie Kirschner, Laura Tom, Catherine A O'Brian, Mira L Katz

Abstract read
In one paragraph

Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Trial
  2. Article
  3. [DNVF Memorandum Health Literacy (Part 2) - Operationalisation and Measuring of Health Literacy from a Health Services Research Perspective].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2022
    Article
  4. Review
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Melissa A SimonDepartment of Obstetrics and Gynecology, Northwestern University Feinberg School of Medicine, 633 N St Clair, Suite 1800, Chicago, IL, 60611, USA. m-simon2@northwestern.edu.
Rodney HaringDepartment of Cancer Prevention and Control, Roswell Park Comprehensive Cancer Center, Buffalo, NY, 14263, USA.
Elisa M RodriguezDepartment of Cancer Prevention and Control, Roswell Park Comprehensive Cancer Center, Buffalo, NY, 14263, USA.
Evelyn GonzálezCommunity Outreach, Fox Chase Cancer Center, Philadelphia, PA, 19111, USA.
Judith S KaurMayo Clinic, Jacksonville, FL, 32224, USA.
Marcie KirschnerDepartment of Obstetrics and Gynecology, Northwestern University Feinberg School of Medicine, 633 N St Clair, Suite 1800, Chicago, IL, 60611, USA.
Laura TomDepartment of Obstetrics and Gynecology, Northwestern University Feinberg School of Medicine, 633 N St Clair, Suite 1800, Chicago, IL, 60611, USA.
Catherine A O'BrianDepartment of Obstetrics and Gynecology, Northwestern University Feinberg School of Medicine, 633 N St Clair, Suite 1800, Chicago, IL, 60611, USA.
Mira L KatzCollege of Public Health, Ohio State University, Columbus, OH, 43210, USA.

Funding

Two-Spirit Films in Indigenous Cancer HealthP30CA016056 · NCI · ROSWELL PARK CANCER INSTITUTE CORP · PI MARK G FRATTINI · 1985 to 2026
$116.6M
Research Education CoreU54CA202997 · NCI · UNIVERSITY OF ILLINOIS AT CHICAGO · PI NAYLOR, KEITH BRIAN, TUSSING-HUMPHREYS, LISA · 2015 to 2024
$13.8M
Research Education CoreU54CA203000 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI GIACHELLO, AIDA L · 2015 to 2024
$12.4M
Multidisciplinary Clinical and Translational Science (MCTS) Program (UL1)UL1TR000150 · NCATS · NORTHWESTERN UNIVERSITY AT CHICAGO · PI LLOYD-JONES, DONALD M · 2012 to 2013
$10.1M
The Chicago Cancer Health Equity Collaborative (ChicagoCHEC)U54CA202995 · NCI · NORTHEASTERN ILLINOIS UNIVERSITY · PI CIECIERSKI, CHRISTINA · 2015 to 2024
$9.5M
Training ProgramU54CA153605 · NCI · MAYO CLINIC ROCHESTER · PI KAUR, JUDITH S, PATTEN, CHRISTI A · 2010 to 2015
$6.4M
Patient Navigation 2.0: Addressing the Challenge of Scaling Navigation through Checklist-based ImplementationR01CA163830 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI SIMON, MELISSA A. · 2012 to 2024
$5.4M
Chicago Cancer Navigation ProjectU01CA116875 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI ROSEN, STEVEN TERRY · 2005 to 2011
$4.5M
Cancer Health Equity Career Development ProgramT32CA057699 · NCI · UNIVERSITY OF ILLINOIS AT CHICAGO · PI Marian L. Fitzgibbon · 2018 to 2026
$3.0M
NU: NEIGHBORS: A Social Science Partnership to Reduce Cancer Disparities (2 of*P20CA165592 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI CELLA, DAVID, SIMON, MELISSA A. · 2011 to 2014
$1.0M
NU: NEIGHBORS: A Social Science Partnership to Reduce Cancer Disparities ( 1 ofP20CA165588 · NCI · NORTHEASTERN ILLINOIS UNIVERSITY · PI CELLA, DAVID, GIDEA, MARIAN · 2011 to 2014
$529k
Enhancing clinical trials participation though library partnershipsG08LM012688 · NLM · NORTHWESTERN UNIVERSITY AT CHICAGO · PI SIMON, MELISSA A. · 2017 to 2019
$298k
NCATS NIH HHS UL1 TR000150NCI NIH HHS 340CA1168875-04-53NCI NIH HHS 5U01 CA116875-05S4NCI NIH HHS P20 CA165588NCI NIH HHS P20 CA165592NCI NIH HHS P30 CA016056NCI NIH HHS R01 CA163830NCI NIH HHS T32 CA057699NCI NIH HHS U01CA116874NCI NIH HHS U01 CA116875NCI NIH HHS U54 CA153605NCI NIH HHS U54CA153605NCI NIH HHS U54 CA202995NCI NIH HHS U54 CA202997NCI NIH HHS U54 CA203000NCI NIH HHS U54CA203000NLM NIH HHS G08 LM012688
6 · The paper itself

Abstract

Racial/ethnic minorities are underrepresented in clinical research in the USA for multifarious reasons, including barriers to effective communication between researchers and potential research participants. To address the communication barriers between researchers and potential participants, we developed a Research Literacy Support (RLS) tool. The focus of this report is to present findings from the second and third phases of development that refined and assessed usability of the RLS tool. We utilized a mixed-methods approach that entailed iterative cognitive testing with participants (N = 52) from diverse racial/ethnic backgrounds and interviews with clinical research recruiters (N = 20) to modify and refine the design and content of the RLS tool (phase 2). This was followed by assessment of the usability of the RLS tool by 100 participants (phase 3). During phase 2, participants provided feedback about layout, word choice, and comprehension of the tool. In phase 3, participants recognized that they had gained knowledge about clinical research from the RLS tool, although they still had a substantial learning gap after using the tool, indicating an opportunity for further refinement. The RLS tool may help advance health equity by addressing communication barriers that may impede minority participation in clinical research.

Indexed as

Communication BarriersAdultBiological Specimen BanksBiomedical ResearchClinical Trials as TopicFemaleHumansLiteracyMaleMiddle AgedMinority GroupsResearch PersonnelYoung AdultBiobankingCancer health disparitiesClinical researchHealth equityResearch literacy

Identifiers

PMID30144005
PMCPMC6934084

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.