ArticleGlobalization and health2018
Involvement of people with schizophrenia in decision-making in rural Ethiopia: a qualitative study.
Article in Globalization and health, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed.
- Effects of community-based rehabilitation on caregivers of people with schizophrenia in Ethiopia in the RISE trial.BMC psychiatry · 2025Trial
- Ethical and Legal Considerations in the Collection and Analysis of Mental Health Lived Experience Narratives: Reflections on 4 Case Studies of Research Practice.JMIR formative research · 2026Article
- Barriers and facilitators to sexual and reproductive healthcare access for women with severe mental illness in low- and middle-income countries: A qualitative systematic review and meta-aggregation.Global mental health (Cambridge, England) · 2026Review
- Experiences and perspectives on traditional and faith healers' involvement in the care of people with severe mental health conditions in ethiopia: a scoping review.International journal of mental health systems · 2025Review
- Charting neuroethics discourse in Africa: A scoping review of ethical issues of neuroscience research in Africa.IBRO neuroscience reports · 2025Article
- Perspectives of healthcare professionals on cross-sectoral collaboration between mental health centers and municipalities: A qualitative study.The International journal of social psychiatry · 2025Article
- Empowerment among treatment-engaged individuals living with schizophrenia in Tanzania.BMC psychiatry · 2025Article
- Strengthening primary health care in Ethiopia: A scoping review of successes, challenges, and pathways towards universal health coverage using the WHO monitoring framework.PLOS global public health · 2025Article
- Research Progress of Shared Decision-Making in Schizophrenia with Anxiety.Neuropsychiatric disease and treatment · 2024Review
- Mental health stigma and discrimination in Ethiopia: evidence synthesis to inform stigma reduction interventions.International journal of mental health systems · 2022Article
- Consent, decisional capacity and guardianship in mental health research.Wellcome open research · 2022Article
- Living beyond the limitation: Rehabilitation, life and productivity of individuals with schizophrenia in South-West Nigeria.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Pathways into and out of homelessness among people with severe mental illness in rural Ethiopia: a qualitative study.BMC public health · 2021Article
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Authors and funding
3 authors.
Funding
Abstract
backgroundThe involvement of people with psychosocial disabilities in decision-making is a fundamental component of a person-centred and recovery-oriented model of care, but there has been little investigation of this approach in low- and middle-income countries. The aim of this study was to explore the involvement of people with schizophrenia in decision-making relating to their care in rural Ethiopia.
methodsA qualitative study was conducted in rural Ethiopia as part of the Rehabilitation Intervention for people with Schizophrenia in Ethiopia (RISE) project, involving two focus group discussions (n = 10) with community-based rehabilitation workers, and 18 in-depth interviews with people with schizophrenia, caregivers, health officers, supervisors and a community-based rehabilitation worker. Thematic analysis was used to examine major themes related to involvement in decision-making in this specific setting.
resultsInvolvement of people with schizophrenia in decision-making in this rural Ethiopian setting was limited and coercive practices were evident. People with schizophrenia tended to be consulted about their care only when they were considered clinically 'recovered'. Caregivers typically had a prominent role in decision-making, but they also acquiesced to the views of health care professionals. People with schizophrenia and caregivers were often unable to execute their desired choice due to inaccessible and unaffordable treatment.
conclusionsCommunity-based rehabilitation, as a model of care, may give opportunities for involvement of people with schizophrenia in decision-making. In order to increase involvement of people with schizophrenia in rural Ethiopia there needs to be greater empowerment of service users, wider availability of treatment choices and a facilitating policy environment. Further studies are needed to explore concepts of person-centred care and recovery across cultural settings.
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