ArticleJournal of advanced nursing2019
Living with dying: A narrative inquiry of people with chronic kidney disease and their family members.
Article in Journal of advanced nursing, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- Ten minutes to midnight: a narrative inquiry of people living with dying with advanced copd and their family members.International journal of qualitative studies on health and well-being · 2021Article
- Living with dying: A narrative inquiry of people with chronic kidney disease and their family members.Journal of advanced nursing · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
aimsTo describe how people diagnosed with chronic kidney disease and their family members describe uncertainty related to impending death.
backgroundThere has been little research about the experiences of people with chronic kidney disease and their family members as they near the end-of-life. We need to understand these experiences to give holistic person-centred care.
designA narrative enquiry was undertaken using a social constructionist perspective.
methodsData were collected in two in-depth interviews, approximately 3-4 months apart, followed by a telephone follow-up 2-3 months later.
resultsEleven people with advanced chronic kidney disease and nine family members/significant others participated. For both participants in the dyad, a number of key themes/storylines were identified. These included recognition that: @life has a boundary, living on the edge, I'm not afraid to die but… and remembering loss and death experiences@.
conclusionsThis enquiry illuminated four key storylines of about death and dying with advanced chronic kidney disease for people with the illness and their family members. Discussion about past experiences with illness, loss, death, and dying can give an entry for discussion about end-of-life. The person with illness and family members often held very similar perceptions and desires, but healthcare professionals' contributions to understanding of the experience were not mentioned. Implications for clinicians include attending to peoples' awareness of death as a distinct opportunity, listening attentively and posing questions that genuinely invite concerns and wishes about end-of-life and living well.
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Registered trials
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