ArticleInternational journal of integrated care2018
The Nature of Patient- and Family-Centred Care for Young Adults Living with Chronic Disease and their Family Members: A Systematic Review.
Article in International journal of integrated care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 28 citations in OpenAlex.
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- The HeartHealth Program: A Mixed Methods Study of a Community-Based Text Messaging Support Program for Patients With Cardiovascular Disease From 2020 to 2024.JMIR cardio · 2026Article
- Development and Content Validation of a Person-Centered Care Instrument for Healthcare Providers.Nursing reports (Pavia, Italy) · 2025Article
- The Hospitalisation Experience and Distress Among Jewish and Bedouin Parents of Hospitalised Children in Israel.Acta paediatrica (Oslo, Norway : 1992) · 2025Article
- Understanding healthcare autonomy among adolescents and young adults in the United States: a scoping review.Frontiers in health services · 2025Review
- Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review.Children (Basel, Switzerland) · 2024Review
- Centredness in health care: A systematic overview of reviews.Health expectations : an international journal of public participation in health care and health policy · 2022Review
- Who is at the centre of what? A scoping review of the conceptualisation of 'centredness' in healthcare.BMJ open · 2022Article
- Kindness, Listening, and Connection: Patient and Clinician Key Requirements for Emotional Support in Chronic and Complex Care.Journal of patient experience · 2022Article
- Article
- Opinion leader empowered patients about the era of digital health: a qualitative study.BMJ open · 2019Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
aimThe published literature addressing the nature of patient- and family-centred care (PFCC) among young adults (16-25 years old) living with chronic disease and their family members is diverse. The aim of this systematic review was to collect and interpretatively synthesise this literature to generate a conceptual understanding of PFCC in this age group.
methodFrom an initial pool of 10,615 papers, 51 were systematically identified as relevant to the research question and appraised using the Critical Appraisal Skills Programme tools. A total of 24 papers passed the quality appraisal and proceeded to a qualitative meta-synthesis.
resultsThe qualitative meta-synthesis revealed three major elements of PFCC relevant to young adults living with chronic disease and their family members: (1) patients and practitioners felt able to engage with each other on an emotional and social level; (2) patients and families felt empowered to be part of the care process; and (3) patients and families experienced care as effective at addressing their individual needs.
conclusionThere is agreement among young adult patients and families about what constitutes PFCC in a chronic disease setting, independent of the aetiology of the pathological process. Patients and families also have strong feelings about how practitioners can achieve PFCC in practice. These findings have implications for the delivery of health services to young adults living with chronic disease and their family members.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.