ArticleJournal of Parkinson's disease2018
Precision Medicine in Parkinson's Disease - Exploring Patient-Initiated Self-Tracking.
Article in Journal of Parkinson's disease, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed.
- Patient- and Public-Led Research - How Is It Defined and Practiced: A Scoping Review.Journal of patient experience · 2026Article
- Prevalence of experienced changes in artistic and everyday creativity in people with Parkinson's disease.NPJ Parkinson's disease · 2025Article
- "The more you learn, the more you can influence"-learning circles to support citizen science in Parkinson's disease: a pilot study in Sweden.Frontiers in public health · 2025Article
- Transcriptomics profiling of Parkinson's disease progression subtypes reveals distinctive patterns of gene expression.Journal of central nervous system disease · 2025Article
- A multidimensional gender analysis of health technology self-efficacy among people with Parkinson's disease.Journal of neurology · 2024Article
- Co-designing a wiki-based community knowledge management system for personal science.Royal Society open science · 2024Article
- Balancing feeling 'prepared' without feeling 'devoured': A qualitative study of self-care from the perspective of self-empowered persons living with Parkinson's disease in Sweden.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- A meta-analysis identifies factors predicting the future development of freezing of gait in Parkinson's disease.NPJ Parkinson's disease · 2023Review
- Redefining the hypotheses driving Parkinson's diseases research.NPJ Parkinson's disease · 2022Review
- A Hybrid Machine Learning and Network Analysis Approach Reveals Two Parkinson's Disease Subtypes from 115 RNA-Seq Post-Mortem Brain Samples.International journal of molecular sciences · 2022Article
- A qualitative exploration of the healthcare challenges and pharmaceutical care needs of people with Parkinson's and their caregivers.International journal of clinical pharmacy · 2022Article
- Community Exercise: A New Tool for Personalized Parkinson's Care or Just an Addition to Formal Care?Frontiers in systems neuroscience · 2022Article
- Digital Technology in Movement Disorders: Updates, Applications, and Challenges.Current neurology and neuroscience reports · 2021Review
- Deep Phenotyping of Parkinson's Disease.Journal of Parkinson's disease · 2020Review
- "You have to know why you're doing this": a mixed methods study of the benefits and burdens of self-tracking in Parkinson's disease.BMC medical informatics and decision making · 2019Article
- Patient, study thyself.BMC medicine · 2018Article
- A Long Way to Go: Patient Perspectives on Digital Health for Parkinson's Disease.Journal of Parkinson's diseaseReview
- Ethical Aspects of Personal Science for Persons with Parkinson's Disease: What Happens When Self-Tracking Goes from Selfcare to Publication?Journal of Parkinson's diseaseArticle
- Review
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIndividually tailored healthcare, in the form of precision medicine, holds substantial potential for the future of medicine, especially for a complex disorder like Parkinson's disease (PD). Patient self-tracking is an under-researched area in PD.
objectiveThis study aimed to explore patient-initiated self-tracking in PD and discuss it in the context of precision medicine.
methodsThe first author used a smartphone app to capture finger-tapping data and also noted times for medication intakes.
resultsData were collected during four subsequent days. Only data from the first two days were complete enough to analyze, leading to the realization that the collection of data over a period of time can pose a significant burden to patients. From the first two days of data, a dip in finger function was observed around the time for the second medication dose of the day.
conclusionsPatient-initiated self-tracking enabled the first author to glean important insights about how her PD symptoms varied over the course of the day. Symptom tracking holds great potential in precision medicine and can, if shared in a clinical encounter, contribute to the learning of both patient and clinician. More work is needed to develop this field and extra focus needs to be given to balancing the burden of tracking for the patient against any expected benefit.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.