ArticleJournal of arthropod-borne diseases2018
Lived Experiences of Patients Suffering from Acute Old World Cutaneous Leishmaniasis: A Qualitative Content Analysis Study from Iran.
Article in Journal of arthropod-borne diseases, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The psychosocial impacts of skin-neglected tropical diseases (SNTDs) as perceived by the affected persons: A systematic review.PLoS neglected tropical diseases · 2024Pooled it
- Stigma associated with cutaneous and mucocutaneous leishmaniasis: A systematic review.PLoS neglected tropical diseases · 2023Pooled it
- Knowledge, attitudes, preventive practices, and associated factors of cutaneous leishmaniasis among adults of Kandahar city, Afghanistan.Scientific reports · 2026Article
- "It left me burnt": Traditional treatment and stigma experiences of cutaneous leishmaniasis in Kalu district, Ethiopia.PLoS neglected tropical diseases · 2026Article
- Understanding the complexity of cutaneous leishmaniasis patient journey in endemic rural Sri Lanka: a qualitative study.BMC infectious diseases · 2025Article
- Atypical Manifestations of Old World Cutaneous Leishmaniasis: A Systematic Review and Clinical Atlas of Unusual Clinical and Specific Anatomical Presentations.Health science reports · 2025Review
- Stigma associated with cutaneous leishmaniasis in rural Sri Lanka: development of a conceptual framework.International health · 2024Article
- Knowledge, attitude, prevention practice and lived experience towards cutaneous leishmaniasis and associated factors among residents of Kutaber district, Northeast Ethiopia, 2022: A mixed method study.PLoS neglected tropical diseases · 2024Article
- Stigma experiences, effects and coping among individuals affected by Buruli ulcer and yaws in Ghana.PLoS neglected tropical diseases · 2024Article
- Involving patients in drug development for Neglected Tropical Diseases (NTDs): A qualitative study exploring and incorporating preferences of patients with cutaneous leishmaniasis into Target Product Profile development.PLoS neglected tropical diseases · 2024Article
- The psychosocial burden of cutaneous leishmaniasis in rural Sri Lanka: A multi-method qualitative study.PLoS neglected tropical diseases · 2024Article
- Health-related quality of life of adults with cutaneous leishmaniasis at ALERT Hospital, Addis Ababa, Ethiopia.PLoS neglected tropical diseases · 2023Article
- Article
- Vulnerabilities to and the Socioeconomic and Psychosocial Impacts of the Leishmaniases: A Review.Research and reports in tropical medicine · 2021Review
- Patients' preferences of cutaneous leishmaniasis treatment outcomes: Findings from an international qualitative study.PLoS neglected tropical diseases · 2020Article
- Leishmaniasis patients' pilgrimage to access health care in rural Bolivia: a qualitative study using human rights to health approach.BMC international health and human rights · 2019Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe aim of this study was to explore the experiences of patients who suffer from acute cutaneous leishmaniasis in Iran, focusing on quality of life.
methodsThe study was conducted at two different sites in Iran in 2010-2011. Individual in-depth interviews were conducted with six men and six women parasitologically confirmed acute cutaneous leishmaniasis. Interviews were recorded, transcribed verbatim, and translated into English. Qualitative content analysis was used for data analysis.
resultsThe participants, aged 23 to 63yr, had mild to severe disease. Based on the analysis four main themes were developed. "Fearing an agonizing disease" reflects patients' experiences of disease development resulting in sadness and depression, "struggling to cope" and "taking on the blame" both illustrate how patients experience living with the disease, which included both felt and enacted stigma as major social concerns. "Longing for being seen and heard" refers to patients' experiences with healthcare as well as their expectations and demands from communities and healthcare to be involved in closing the knowledge and awareness gap.
conclusionMental and social dimensions of cutaneous leishmaniasis were complex and adversely affected patients' lives by causing psychological burden and limiting their social interactions. Health authorities have to plan programs to increase the disease awareness to prevent the existing stigma to improve patients' social condition and medical care.
Indexed as
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30123812PMC6091796What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.