ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Long-term views on chronic kidney disease research priorities among stakeholders engaged in a priority-setting partnership: A qualitative study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The trial behind it
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Who cites it
6 citing papers in PubMed.
- Systematic Review of Patient and Caregiver Involvement in CKD Research.Kidney international reports · 2025Article
- Article
- Community engagement in kidney research: Guatemalan experience.BMC nephrology · 2022Article
- Article
- It takes two to tango: carers' reflections on their participation and the participation of people with dementia in the James Lind Alliance process.BMC geriatrics · 2020Article
- Long-term views on chronic kidney disease research priorities among stakeholders engaged in a priority-setting partnership: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2018Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundPatients and stakeholders are increasingly engaging in health research to help address evidence-practice gaps and improve health-care delivery. We previously engaged patients, caregivers, health-care providers (HCPs) and policymakers in identifying priorities for chronic kidney disease (CKD) research.
objectiveWe aimed to explore participants' views on the research priorities and prioritization process 2 years after the exercise took place.
designIn this qualitative descriptive study, individual interviews were conducted and analysed using an inductive, thematic analysis approach. SETTING/
participantsParticipants resided across Canada. We purposively sampled across stakeholder groups (CKD patients, caregivers, HCPs and policymakers) and types of engagement (wiki, workshop and/or steering committee) from the previous CKD priority-setting project.
resultsAcross 23 interviews, participants discussed their research priorities over time, views on the prioritization process and perceived applicability of the priorities. Even though their individual priorities may have changed, participants remained in agreement overall with the previously identified priorities, and some perceived a distinction between patient and HCP priorities. They tended to balance individual priorities with their broader potential impact and viewed the prioritization process as systematic, collaborative and legitimate. However, participants acknowledged challenges to applying the priorities and emphasized the importance of communicating the project's outcomes upon its completion.
conclusionTwo years after engaging in CKD research prioritization, stakeholder participants remained in agreement with the previously identified priorities, which they felt reflected group deliberation and consensus. Rapport and communication were highlighted as key elements supporting effective engagement in research prioritization.
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