ArticleHarm reduction journal2018
Beyond cure: patient reported outcomes of hepatitis C treatment among people who inject drugs in Australia.
Article in Harm reduction journal, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
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Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Transformation of identity in substance use as a pathway to recovery and the potential of treatment for hepatitis C: a systematic review.Addiction (Abingdon, England) · 2023Pooled it
- Mobile Telemedicine for Treating Chronic Hepatitis C Among Rural People Who Inject Drugs: A Randomized Clinical Trial.JAMA network open · 2026Trial
- Clinical outcomes and patient-reported measures in HCV care: Insight from a longitudinal prospective study in a large Italian region.PloS one · 2026Article
- Relationship Between Patient-Reported Experiences and Treatment Satisfaction Among Men and Women in Residential Substance Use Treatment.Drug and alcohol review · 2025Article
- Post-treatment life-trajectories among people who inject drugs who completed hepatitis C treatment with direct acting antivirals: A thematic analysis.British journal of health psychology · 2025Article
- Future destinations: how people cured of hepatitis C using direct acting antiviral drugs progress in a new HCV-free world. A thematic analysis.Harm reduction journal · 2025Article
- What is a cure through gene therapy? An analysis and evaluation of the use of "cure".Medicine, health care, and philosophy · 2024Article
- Patient acceptability of, and attitudes towards, hepatitis B cure research - A scoping review and identification of knowledge gaps.Journal of virus eradication · 2023Article
- Complicating cure: How Australian criminal law shapes imagined post-hepatitis C futures.Sociology of health & illness · 2023Article
- Balancing uncertainty and proactivity in care seeking for hepatitis C: qualitative research with participants enrolled in a treatment trial in Ho Chi Minh City, Vietnam.International journal of qualitative studies on health and well-being · 2022Article
- Observational
- Future destinations and social inclusion scoping review: how people cured of hepatitis C (HCV) using direct- acting antiviral drugs progress in a new HCV-free world.Substance abuse treatment, prevention, and policy · 2022Article
- Peer-facilitated treatment access for hepatitis C: the Live Hep C Free project.Harm reduction journal · 2022Article
- Hepatitis C cure as a 'gathering': Attending to the social and material relations of hepatitis C treatment.Sociology of health & illness · 2022Article
- Article
- "Like a pickle that's been unpickled": Emotional, identity and behavioural transformations throughout hepatitis C treatment.PloS one · 2022Article
- "Stigma is where the harm comes from": Exploring expectations and lived experiences of hepatitis C virus post-treatment trajectories among people who inject drugs.The International journal on drug policy · 2021Article
- Assessing potential cures: are there distinctive elements of value beyond health gain?Journal of comparative effectiveness research · 2021Article
- Beyond clinical outcomes: the social and healthcare system implications of hepatitis C treatment.BMC infectious diseases · 2020Article
- Recommendations for Implementing Hepatitis C Virus Care in Homeless Shelters: The Stakeholder Perspective.Hepatology communications · 2020Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundRecent advances in the treatment of hepatitis C virus (HCV) infection provide the possibility of eliminating HCV as a public health threat. This focus on HCV elimination through treatment, however, is also driving a concomitant focus on 'achieving cure' as the primary outcome of treatment. The aim of this paper is to explore what people who inject drugs consider to be important in relation to outcomes of HCV treatment, and whether there are outcomes 'beyond cure' that might be important to understand as part of improving engagement in treatment.
methodsA peer researcher with experience of both HCV treatment and injecting drug use conducted interviews with 24 people in the following groups in Melbourne, Australia: (1) people who had refused or deferred HCV treatment; (2) people who were actively thinking about, planning and/or about to commence HCV treatment; (3) people currently undertaking HCV treatment and (4) people who had recently completed HCV treatment.
resultsThe findings show that people who inject drugs are seeking outcomes 'beyond cure' including improved physical and mental health, positive changes in identity and social relationships and managing future health and risk. Participants indicated that these other outcomes had not been addressed within their experience of HCV treatment.
conclusionWhile cure is an obvious outcome of HCV treatment, patients are seeking change in other areas of their lives. This study also provides valuable insights for the development of patient-reported measures in this context, which would be an important step towards more patient-centred approaches to HCV treatment.
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