ArticleJournal of intellectual disability research : JIDR2018
Mobile technology use and skills among individuals with fragile X syndrome: implications for healthcare decision making.
Article in Journal of intellectual disability research : JIDR, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Behavioral and Cognitive Interventions With Digital Devices in Subjects With Intellectual Disability: A Systematic Review.Frontiers in psychiatry · 2021Pooled it
- eHealth in the support of people with mild intellectual disability in daily life: A systematic review.Journal of applied research in intellectual disabilities : JARID · 2020Pooled it
- Safer Online Lives: Internet Use and Online Experiences of Adults With Intellectual Disabilities-A Survey Study.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Supplementing Consent for a Prospective Longitudinal Cohort Study of Infants With Antenatal Opioid Exposure: Development and Assessment of a Digital Tool.JMIR formative research · 2025Observational
- 'It's especially good just to know that you're not the only one': a qualitative study exploring experiences with online peer support programmes for the Fragile X community.Journal of intellectual disability research : JIDR · 2025Article
- Experiences with Take it Personal!+ from People with Mild Intellectual Disability or Borderline Intellectual Functioning and Substance Use Disorder and Their Confidants: A Qualitative Study.Journal of mental health research in intellectual disabilities · 2025Article
- Testing Two Online Symptom Checkers With Vulnerable Groups: Usability Study to Improve Cognitive Accessibility of eHealth Services.JMIR human factors · 2024Article
- Using mobile health to encourage physical activity in individuals with intellectual disability: a pilot mixed methods feasibility study.Frontiers in rehabilitation sciences · 2023Article
- mHealth Support to Stimulate Physical Activity in Individuals With Intellectual Disability: Protocol for a Mixed Methods Pilot Study.JMIR research protocols · 2022Article
- Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities.Brain sciences · 2019Article
- Recent Technology-Aided Programs to Support Adaptive Responses, Functional Activities, and Leisure and Communication in People With Significant Disabilities.Frontiers in neurology · 2019Review
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
backgroundLittle is known about how individuals with fragile X syndrome (FXS) and their families use technology in daily life and what skills individuals with FXS can perform when using mobile technologies.
methodsUsing a mixed-methods design, including an online survey of parents (n = 198) and a skills assessment of individuals with FXS (n = 6), we examined the experiences and abilities of individuals with FXS for engaging with mobile technology.
resultsParents reported that individuals with FXS often used technology in their daily lives, with variations based on age of child, sex, autism status, depression, and overall ability. Parents frequently sought and shared FXS-related information online. Assessment data revealed that individuals with FXS demonstrated proficiency in interacting with technology.
conclusionsMobile technology is a tool that can be used in FXS to build skills and increase independence rather than simply for recreational purposes. Implications for using mobile technology to enhance healthcare decision making are discussed.
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Registered trials
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