ArticleInternational journal of environmental research and public health2018
Association between Oral Health-Related Quality of Life in People with Rare Diseases and Their Satisfaction with Dental Care in the Health System of the Federal Republic of Germany.
Article in International journal of environmental research and public health, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed, 33 citations in OpenAlex.
- Assessing healthcare experiences and barriers to care among individuals with ectodermal dysplasia.Orphanet journal of rare diseases · 2026Article
- Extraneural Soft Tissue Perineurioma of the Oral Cavity: A Rare Case with Medico-Legal Implications and Literature Review.Life (Basel, Switzerland) · 2025Review
- Oral Problems in Brazilian Individuals with Rare Genetic Diseases That Affect Skeletal Development.International journal of environmental research and public health · 2024Article
- Oral health-related quality of life in Fanconi anemia: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Observational
- Determinants of dental care use in patients with rare diseases: a qualitative exploration.BMC oral health · 2023Article
- Oral Health-Related Quality of Life in Different Subtypes of Ehlers-Danlos Syndrome.International journal of environmental research and public health · 2023Article
- Quantitative data collection approaches in subject-reported oral health research: a scoping review.BMC oral health · 2022Article
- Oral Health-Related Quality of Life among Children and Adolescents with Beckwith-Wiedemann Syndrome in Northern Italy.Journal of clinical medicine · 2022Article
- Consideration of oral health in rare disease expertise centres: a retrospective study on 39 rare diseases using text mining extraction method.Orphanet journal of rare diseases · 2022Article
- Correlation between Oral Health-Related Quality of Life and Objectively Measured Oral Health in People with Ehlers-Danlos Syndromes.International journal of environmental research and public health · 2020Article
- Oral Conditions and Oral Health-Related Quality of Life of People with Ehlers-Danlos Syndromes (EDS): A Questionnaire-Based Cross-Sectional Study.Medicina (Kaunas, Lithuania) · 2020Article
- Oral health-related quality of life in Loeys-Dietz syndrome, a rare connective tissue disorder: an observational cohort study.Orphanet journal of rare diseases · 2019Article
- Self-Assessment of Oral Health-Related Quality of Life in People with Ectodermal Dysplasia in Germany.International journal of environmental research and public health · 2019Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe aim of this study was to examine the current dental care situation in Germany from the perspective of those affected by a rare disease, especially concerning their satisfaction with the German dental health care system, and thus assess the relationship between their perspective and their oral health-related quality of life (OHRQoL).
methodsA questionnaire regarding their experiences with the dental assistance and the health care system, such as the OHIP-14, was sent to the member associations of the organization of self-help groups for rare diseases ACHSE e.V. The correlation between OHIP-14 values and patient's perspective was statistically analyzed by the non-parametric Tau de Kendall test (
resultsThere was a statistically significant correlation between the OHIP score and the patient's perspective regarding dental assistance and health care system ( DISCUSSION: The majority of respondents with rare diseases are dissatisfied with the German health care system and its support with regard to dental care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.