ArticleClinical trials (London, England)2018
Recruitment and retention of the Hardest-to-Reach families in community-based asthma interventions.
Article in Clinical trials (London, England), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- A Pilot Pragmatic Cluster Randomized Trial of School-Supervised Therapy to Improve Pediatric Asthma Control.The journal of allergy and clinical immunology. In practice · 2025Trial
- Recruiting people facing social disadvantage: the experience of the Free Meds study.International journal for equity in health · 2021Trial
- Quantifying the role of communication in recruitment status outcomes for a clinical trial on genetic testing uptake.Contemporary clinical trials · 2026Article
- Evaluation of a Program to Reduce Home Environment Risks for Children with Asthma Residing in Urban Areas.International journal of environmental research and public health · 2021Article
- Optimizing Recruitment of Black Adolescents into Behavioral Research: A Multi-Center Study.Journal of pediatric psychology · 2021Article
- A community-based asthma program: Study design and methods of RVA Breathes.Contemporary clinical trials · 2020Article
- Article
- Recruiting Adolescents from Medicaid Enrollment Files into a Neighborhood Oral Health Study.JDR clinical and translational research · 2019Article
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Authors and funding
6 authors.
Funding
Abstract
BACKGROUND/
aimsEngaging underserved populations in research requires substantial effort for recruitment and retention. The objective of this study is to describe the effort needed to recruit and retain urban participants in pediatric asthma studies and to characterize the Hardest-to-Reach group by demographics and asthma severity.
methodsWe included 311 children (3-10 years) with persistent asthma enrolled in two school-based asthma interventions in Rochester, NY. Contact logs were collected at four time points (baseline, 2 month, 4 month, 6 month). We defined "Hardest-to-Reach" (vs "Easier-to-Reach") as being unable to reach a family by telephone at any given contact attempt due to disconnected or wrong numbers. Chi-square and Mann-Whitney tests were used to compare groups.
resultsOverall, we enrolled 311 children (60% Black, 29% Hispanic, 70% Medicaid, response rate 70%). On average, 3.1 contact attempts were required for recruitment (range 1-15), and 35% required rescheduling at least once for the enrollment visit. All but 12 participants completed each follow-up (retention rate = 96%). Completion of follow-ups required an average of 7.6 attempts; we considered 38% of caregivers "Hardest-to-Reach." Caregivers in the Hardest-to-Reach group were slightly younger (33 vs 36 years, p = 0.007) with more depressive symptoms (41% vs 29%, p = 0.035) and smokers in the home (59% vs 48%, p = 0.048). Furthermore, more of the Hardest-to-Reach children had moderate-severe versus mild persistent asthma (64% vs 52%, p = 0.045). Importantly, even the Easier-to-Reach families required many contact attempts, with 52% having >5 attempts for at least one follow-up.
conclusionIn conclusion, we found that among an already vulnerable population, the Hardest-to-Reach families demonstrated higher risk and had children with significantly worse asthma. This study highlights the importance of persistence in reaching those in greatest need.
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