ReviewFrontiers in neurology2018
Communication Matters-Pitfalls and Promise of Hightech Communication Devices in Palliative Care of Severely Physically Disabled Patients With Amyotrophic Lateral Sclerosis.
Review in Frontiers in neurology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
35 citing papers in PubMed, 1 synthesis or guideline pooled it, 78 citations in OpenAlex.
- Integrating Assistive Technologies and Smart Home Systems in Neuromuscular Disorders: A Systematic Narrative Review of Clinical Outcomes and Occupational Therapy Perspectives.Occupational therapy international · 2026Pooled it
- Interim Safety Profile From the Feasibility Study of the BrainGate Neural Interface System.Neurology · 2023Trial
- Efficacy of different interaction devices using non-immersive virtual tasks in individuals with Amyotrophic Lateral Sclerosis: a cross-sectional randomized trial.BMC neurology · 2018Trial
- Clinical-functional dissociation in bilateral vestibulopathy: determinants of disability beyond peripheral vestibular loss.Journal of neurology · 2026Article
- The evolution of speech communication devices for anarthria: a review.Journal of neurology · 2026Review
- GRASP: a response-locked paradigm that reveals low-beta desynchronisation is a participant-invariant signature of semantic decoding in EEG.Frontiers in human neuroscience · 2026Article
- Noncontact Gesture-Based Switch Improves Communication Speed and Social Function in Advanced Duchenne Muscular Dystrophy: A Case Report.Healthcare (Basel, Switzerland) · 2025Article
- Blueprint of Collapse: Precision Biomarkers, Molecular Cascades, and the Engineered Decline of Fast-Progressing ALS.International journal of molecular sciences · 2025Review
- Assistive Technologies for Individuals with a Disability from a Neurological Condition: A Narrative Review on the Multimodal Integration.Healthcare (Basel, Switzerland) · 2025Review
- Artificial intelligence empowered voice generation for amyotrophic lateral sclerosis patients.Scientific reports · 2025Article
- Rehabilitation Interventions in Adults with Amyotrophic Lateral Sclerosis: A Review :.Galen medical journal · 2025Review
- Patients and treatments in a neuropalliative outpatient clinic: an analysis of clinical routine data from five years of care.Frontiers in neurology · 2025Article
- Making Video Games More Inclusive for People Living With Motor Neuron Disease: Scoping Review.JMIR rehabilitation and assistive technologies · 2024Article
- An Intrinsically Explainable Method to Decode P300 Waveforms from EEG Signal Plots Based on Convolutional Neural Networks.Brain sciences · 2024Article
- Update on recent advances in amyotrophic lateral sclerosis.Journal of neurology · 2024Review
- Brain-Computer Interfaces, Completely Locked-In State in Neurodegenerative Diseases, and End-of-Life Decisions.Journal of bioethical inquiry · 2024Article
- Communication strategies for adults in palliative care: the speech-language therapists' perspective.BMC palliative care · 2024Article
- Impairment of oculomotor functions in patients with early to advanced amyotrophic lateral sclerosis.Journal of neurology · 2024Article
- Digital Alternative Communication for Individuals with Amyotrophic Lateral Sclerosis: What We Have.Journal of clinical medicine · 2023Review
- Effects of Aided Communication on Communicative Participation for People With Amyotrophic Lateral Sclerosis.American journal of speech-language pathology · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Amyotrophic lateral sclerosis (ALS) is the most common motor neuron disease, leading to progressive paralysis, dysarthria, dysphagia, and respiratory disabilities. Therapy is mostly focused on palliative interventions. During the course of the disease, verbal as well as nonverbal communicative abilities become more and more impaired. In this light, communication has been argued to be "the essence of human life" and crucial for patients' quality of life. High-tech augmentative and alternative communication (HT-AAC) technologies such as eyetracking based computer devices and brain-computer-interfaces provide the possibility to maintain caregiver-independent communication and environmental control even in the advanced disease state of ALS. Thus, they enable patients to preserve social participation and to independently communicate end-of-life-decisions. In accordance with these functions of HT-AAC, their use is reported to strengthen self-determination, increase patients' quality of life and reduce caregiver burden. Therefore, HT-AAC should be considered as standard of (palliative) care for people with ALS. On the other hand, the supply with individually tailored HT-AAC technologies is limited by external and patient-inherent variables. This review aims to provide an overview of the possibilities and limitations of HT-AAC technologies and discuss their role in the palliative care for patients with ALS.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.