ArticleJournal of adolescent and young adult oncology2018
Balancing Hope and Risk Among Adolescent and Young Adult Cancer Patients with Late-Stage Cancer: A Qualitative Interview Study.
Article in Journal of adolescent and young adult oncology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 42 citations in OpenAlex.
- Why Do Cancer Patients Decide to Withdraw Their Treatment? A Systematic Review and Meta-Synthesis.Cancer medicine · 2026Pooled it
- Exploring Factors Influencing Decisions to Withdraw Treatment in Iranian Patients With Metastatic Cancer: A Qualitative Content Analysis Study.Journal of preventive medicine and public health = Yebang Uihakhoe chi · 2026Article
- Development of a Novel Psychosocial Intervention to Improve Symptom Management for Adolescents and Young Adults with Advanced or Recurrent Cancer.Journal of adolescent and young adult oncology · 2026Article
- Legacy Building from the Perspective of Palliative Care Professionals in Portugal: A Qualitative Thematic Analysis.Nursing reports (Pavia, Italy) · 2025Article
- Partnership and fatherhood outcomes in young men diagnosed with cancer: a nationwide register-based study.Journal of cancer survivorship : research and practice · 2025Article
- Personal legacy and treatment choices for serious illness: a scoping review.BMJ supportive & palliative care · 2024Article
- Legacy in End-of-Life Care: A Concept Analysis.Nursing reports (Pavia, Italy) · 2024Review
- Social support resources in adolescents and young adults with advanced cancer: a qualitative analysis.BMC palliative care · 2024Article
- Facing life-threat during youth: a qualitative study on challenges, coping, and needs among adolescents and young adults with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Advanced Cancer in Young Adults (YAs): Living in a Liminal Space.Qualitative health research · 2024Article
- Perceptions and attitudes of medical oncologists regarding fertility preservation and pregnancy in high-risk cancer patients: A survey among Canadian medical oncologists.Cancer medicine · 2023Article
- Conceptions of Legacy Among People Making Treatment Choices for Serious Illness: Protocol for a Scoping Review.JMIR research protocols · 2022Article
- Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer.Journal of adolescent and young adult oncology · 2022Article
- Article
- "Finding my way in a maze while the clock is ticking": The daily life challenges of adolescents and young adults with an uncertain or poor cancer prognosis.Frontiers in oncology · 2022Article
- Parental views on communication between children and clinicians in pediatric oncology: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Contingent hope theory: The developmental exploration of hope and identity reconciliation among young adults with advanced cancers.Palliative & supportive care · 2021Article
- "Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer.Pediatric blood & cancer · 2021Article
- Identification of Evidence for Key Positive Psychological Constructs in Pediatric and Adolescent/Young Adult Patients with Cancer: A Scoping Review.Journal of adolescent and young adult oncology · 2021Article
- Assume It Will Break: Parental Perspectives on Negative Communication Experiences in Pediatric Oncology.JCO oncology practice · 2021Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
purposePrevious studies have called for further research to explore adolescent and young adult (AYA) decision-making in the context of advanced cancer to understand the perspectives of this understudied population. We conducted a qualitative study with patients and providers to better understand the decision-making experience of AYA patients with advanced stages of cancer.
methodsSemistructured qualitative telephone interviews were conducted from April 2016 to October 2016. English-speaking AYAs and healthcare providers were recruited through the social media sites Twitter and Facebook. AYAs were eligible if they were aged 18-39 years at diagnosis and self-reported having metastatic cancer; any provider who worked with AYAs with metastatic cancer was eligible. Researchers with expertise in qualitative methods conducted inductive thematic content analysis of transcribed interviews. The analyzed data were used to formulate recommendations for clinicians.
resultsTwelve AYA patients with self-reported stage IV cancer and five clinicians who care for AYAs with advanced stages of cancer were enrolled and shared their experience about AYA medical decision-making. Four primary themes emerged: (1) AYAs describe receiving unclear prognosis, (2) AYAs balance concepts of hope and risk, (3) AYAs choose aggressive treatment options, and (4) AYAs want support facing mortality. Recommendations for clinicians include clear communication about prognosis and side effects and concerted efforts to elicit patient values.
conclusionAYA patients and clinicians provided insights into the experiences and decision-making processes of AYA patients choosing to continue or discontinue treatment and into the areas for improvement in patient-centered oncology care. Taken together, these data provide important suggestions for clinicians caring for this vulnerable population.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.