ArticleJournal of global oncology2018
Qualitative Analysis of Palliative Care for Pediatric Patients With Cancer at Bugando Medical Center: An Evaluation of Barriers to Providing End-of-Life Care in a Resource-Limited Setting.
Article in Journal of global oncology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
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Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Barriers to timely diagnosis and treatment of childhood cancer in Sub-Sahara Africa: a qualitative systematic review.BMC cancer · 2025Pooled it
- Validation of Pediatric Self-Report Pain Scales in Sub-Saharan Africa: A Systematic Review.Journal of pain and symptom management · 2025Pooled it
- Validation of a Swahili Pediatric Pain Scale in Tanzania: An Observational Study.Pain management nursing : official journal of the American Society of Pain Management Nurses · 2026Observational
- Article
- Health and economic impact of caregiving on informal caregivers of people with chronic diseases in sub-Saharan Africa: A systematic review.PLOS global public health · 2024Article
- Challenges in the Provision of Pediatric Palliative Care in Mexico: A Cross-Sectional Web-Based Survey.Journal of palliative care · 2024Article
- Communicating bad news to patients and families in African oncology settings.Psycho-oncology · 2023Article
- Willingness of advanced cancer patients to receive palliative care and its determinants: A cross-sectional study in Northern Tanzania.PloS one · 2023Article
- Cancer treatment-related financial toxicity experienced by patients in low- and middle-income countries: a scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Patients' pathways to cancer care in Tanzania: documenting and addressing social inequalities in reaching a cancer diagnosis.BMC health services research · 2022Article
- A qualitative study of Ghanaian pediatric oncology nurses' care practice challenges.BMC nursing · 2021Article
- Investigating the challenges and barriers of palliative care delivery in Iran and the World: A systematic review study.Journal of education and health promotion · 2021Review
- Dynamics on the field: a focused study on the culture and context of pediatric pain management at four Ghanaian hospitals.BMC pediatrics · 2020Article
- Barriers to the early integration of palliative care in pediatric oncology in 11 Eurasian countries.Cancer · 2020Article
- Evaluating Barriers and Opportunities in Delivering High-Quality Oncology Care in a Resource-Limited Setting Using a Comprehensive Needs Assessment Tool.Journal of global oncology · 2018Article
Corrections and comments
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Authors and funding
4 authors.
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Abstract
Purpose Palliative care remains an urgent, neglected need in the developing world. Global disparities in end-of-life care for children, such as those with advanced cancers, result from barriers that are complex and largely unstudied. This study describes these barriers at Bugando Medical Center, one of three consultant hospitals in Tanzania, to identify areas for palliative care development suitable to this context. Methods In-depth interviews were conducted with 20 caregivers of pediatric patients with cancer and 14 hospital staff involved in pediatric end-of-life care. This was combined with 1 month of participant observation through direct clinical care of terminally ill pediatric patients. Results Data from interviews as well as participant observation revealed several barriers to palliative care: financial, infrastructure, knowledge and cultural (including perceptions of pediatric pain), and communication challenges. Although this study focused on barriers, what also emerged were the unique advantages of end-of-life care in this setting, including community cohesiveness and strong faith background. Conclusion This study provides a unique but focused description of barriers to palliative care common in a low-resource setting, extending beyond resource needs. This multidisciplinary qualitative approach combined interviews with participant observation, providing a deeper understanding of the logistical and cultural challenges in this setting. This new understanding will inform the design of more effective-and more appropriate-palliative care policies for young patients with cancer in the developing world.
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