ReviewBMC palliative care2018
Perceptions of trained laypersons in end-of-life or advance care planning conversations: a qualitative meta-synthesis.
Review in BMC palliative care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 25 citations in OpenAlex.
- Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021Trial
- Participant Perceptions of a Trauma-Informed Advanced Care Planning Intervention: A Qualitative Study.Journal of palliative medicine · 2026Article
- Tree of peaches: exploring what matters most at the end-of-life among healthy older adults in Taiwan: a qualitative study.BMC palliative care · 2026Article
- Identifying the pathways to increased death literacy: Building a conceptual causal model through a mixed-methods pragmatic ESC-DAGs approach.Palliative care and social practice · 2026Article
- Conceptualizing end-of-life communication by nursing staff as part of advance care planning with older people: A multiple discipline focus group study.International journal of nursing studies advances · 2025Article
- Validating the self-competence in death work scale for end-of-life care volunteers.BMC palliative care · 2025Article
- Essential Advance Care Planning Intervention Features in Low-Income Communities: A Qualitative Study.Journal of pain and symptom management · 2025Article
- Summary of evidence to facilitate the implementation of advance care planning among advanced cancer patients.Zhong nan da xue xue bao. Yi xue ban = Journal of Central South University. Medical sciences · 2024Article
- A model for community-led peer-facilitated advance care planning workshops for the public.Palliative care and social practice · 2023Article
- Is This ACP? A Focus Group Study of Patient Experiences of Advance Care Planning.Journal of general internal medicine · 2022Article
- Evaluation of the LIGHT Curriculum: An African American Church-Based Curriculum for Training Lay Health Workers to Support Advance Care Planning, End-of-Life Decision Making, and Care.Journal of palliative medicine · 2022Article
- Exploring Community-Dwelling Older Adults' Considerations About Values and Preferences for Future End-of-Life Care: A Study from Sweden.The Gerontologist · 2020Article
- Community-Based Conversations about Advance Care Planning for Underserved Populations Using Lay Patient Navigators.Journal of palliative medicine · 2020Article
- "Find Out What They Lack, Try to Provide": A Qualitative Investigation of Palliative Care Services Adapted to Local Need in a Low-Resource Setting.Journal of palliative medicine · 2020Article
- Development of a Community Advance Care Planning Guides Program and the RELATE Model of Communication.The American journal of hospice & palliative care · 2020Article
- LIGHT: A Church-Based Curriculum for Training African American Lay Health Workers to Support Advance Care Planning and End-of-Life Decision-Making.Health equity · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundLaypersons including volunteers, community health navigators, or peer educators provide important support to individuals with serious illnesses in community or healthcare settings. The experiences of laypersons in communication with seriously ill peers is unknown.
methodsWe performed an ENTREQ-guided qualitative meta-synthesis. We conducted a systematic search of MEDLINE, PsycINFO, CINAHL, Cochrane Library, and AMED to include qualitative studies with data regarding communication and laypersons in advance care planning, palliative care, or end-of-life settings. Study quality was appraised using a standardized tool. The analysis identified key domains and associated themes relating specifically to laypersons' perspectives on communication.
resultsOf 877 articles, nine studies provided layperson quotations related to layperson-to-peer communication associated with advance care planning (n = 4) or end-of-life conversations (n = 5). The studies were conducted in United Kingdom (n = 4) or United States settings (n = 5). The synthesis of layperson perspectives yielded five main domains: 1) layperson-to-peer communication, focusing on the experience of talking with peers, 2) layperson-to-peer interpersonal interactions, focusing on the entire interaction between the layperson and peers, excluding communication-related issues, 3) personal impact on the layperson, 4) layperson contributions, and 5) layperson training. Laypersons described using specific communication skills including the ability to build rapport, discuss sensitive issues, listen and allow silence, and respond to emotions.
conclusionsPublished studies described experiences of trained laypersons in conversations with peers related to advance care planning or end-of-life situations. Based on these layperson perspectives related to communication, programs should next evaluate the potential impact of laypersons in meaningful conversations.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.