Evidence map›Paper›PMID 30075776›Full record

Trial reportBMC palliative care2018

Palliative care for patients with a substance use disorder and multiple problems: a study protocol.

Anne Ebenau, Boukje Dijkstra, Marianne Stal-Klapwijk, Chantal Ter Huurne, Ans Blom, Kris Vissers, Marieke Groot

Open access · goldAbstract readPragmatic Clinical Trial
In one paragraph

Trial report in BMC palliative care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
2.6field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 9 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 5 institutions in 2 countries.

Anne EbenauSalvation Army, Central Netherlands, Zandvoortweg 211; 3741 BE, Baarn, the Netherlands. Anne.Ebenau@radboudumc.nl.ORCID http://orcid.org/0000-0001-8827-8725
Boukje DijkstraNijmegen Institute for Scientist-Practitioners in Addiction (NISPA), P.O. Box 6909, 6503 GK, Nijmegen, the Netherlands.
Marianne Stal-KlapwijkSalvation Army, Central Netherlands, Zandvoortweg 211; 3741 BE, Baarn, the Netherlands.
Chantal Ter HuurneTactus Addiction care, Lokatie Ripperdastraat, Ripperdastraat 8, 7511 JR, Enschede, The Netherlands.
Ans BlomNetwork Palliative Care region Arnhem and de Liemers, Hospice Rozenheuvel, Rosendaalselaan 20, 6891 DD, Rozendaal, the Netherlands.
Kris VissersDepartment of Anesthesiology, Radboud University Medical Center, Pain and Palliative Care, Expertise Center for Palliative Care, Internal Post 549, P.O. Box 9101, 6500 HB, Nijmegen, the Netherlands.
Marieke GrootSalvation Army, Central Netherlands, Zandvoortweg 211; 3741 BE, Baarn, the Netherlands.
Radboud University Nijmegen · NLCentral Military Hospital · NLNijmegen Institute for Scientist Practitioners in Addiction · NLTactus Verslavingszorg · NLThe Salvation Army United States · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe specific palliative care needs and problems of patients with a substance use disorder and multiple problems, and those of their proxies, are under recognized Besides, the organization of palliative care, including the division of health care professionals' responsibilities, is often unclear. Perspectives of patients and proxies are hardly known. We describe the outline of a study designed to explore how palliative care for patients with a substance use disorder is organized in the Netherlands and to explore problems and needs, as well as possible improvements from the healthcare professionals', patients' and proxies' perspective. The aim of this protocol paper is to provide insights in ways to conduct research with vulnerable research participants and to offer a detailed description of the study design. The broader study aims to gain insight in and formulate recommendations on how to improve palliative care for patients with a substance use disorder.

methodsA qualitative study with patients, proxies and healthcare professionals. Semi-structured interviews will be held with 10-15 patients who suffer from a severe substance use disorder. They are in a palliative care trajectory and either diagnosed with a chronic or life-threatening disease or, as a result of addictive behavior, a physical deterioration without the prospect of cure. Semi-structured interviews will also be held with 5-10 proxies. Healthcare professionals, volunteers and/or 'experts-by-experience' (n = 24-40) will be participating in semi-structured group interviews. All (group) interviews will be thematically analyzed. Additionally, a strengths, weaknesses, opportunities and threats (SWOT) analysis will be applied to the group interview data with the aim to summarize and concretize the findings. DISCUSSION: Everyone has a right to an optimal end-of-life phase of life and a dignified dying process. This study will provide valuable knowledge about palliative care for patients with a substance use disorder and explicitly bring to light the needs and problems of the patients and their proxies and healthcare professionals in a palliative care phase.

Indexed as

HumansInterviews as TopicNetherlandsPalliative CareQualitative ResearchSubstance-Related DisordersAddictionPalliative careQualitative researchStudy protocolSubstance use disorderVulnerability

Identifiers

PMID30075776
PMCPMC6091086
OpenAlexW2887273150

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.