ArticleArchives of physical medicine and rehabilitation2019
Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures.
Article in Archives of physical medicine and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
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Who cites it
25 citing papers in PubMed.
- Barriers to Medication Adherence and Mild Cognitive Impairment Among African Americans with Persistently Uncontrolled Hypertension: A Cross-sectional Analysis from the Southeastern Collaboration Trial.Journal of general internal medicine · 2026Trial
- Layperson-Supported, Web-Delivered Cognitive Behavioral Therapy for Depression in Older Adults: Randomized Controlled Trial.Journal of medical Internet research · 2024Trial
- Caregiver strain is strongly associated with health and family outcomes in military couples following traumatic brain injury in service members and veterans.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Patient-Reported Characteristics and Care-Seeking among Canadian Adults with Chronic Pain: An Online Cross-Sectional Survey.Canadian journal of pain = Revue canadienne de la douleur · 2026Article
- ENGAGE-TBI: adaptation of a community-based intervention to improve social participation after brain injury.Brain injury · 2025Article
- Article
- The Family Wellness Program: a bench to bedside translation of behavioral and social science research into a clinical program for intimate partners of warfighters following traumatic brain injury.Frontiers in health services · 2025Review
- A Mindfulness-Based Lifestyle Intervention for Dementia Risk Reduction: Protocol for the My Healthy Brain Feasibility Randomized Controlled Trial.JMIR research protocols · 2024Article
- The interaction of financial toxicity and social support on social functioning in post-chemotherapy breast cancer patients: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Layperson-Facilitated Internet-Delivered Cognitive Behavioral Therapy for Homebound Older Adults With Depression: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2023Article
- Loneliness, social isolation, and social support in older adults with active cancer during the COVID-19 pandemic.Journal of geriatric oncology · 2022Article
- Preferred Self-Administered Questionnaires to Assess Resilience, Optimism, Pain Acceptance, and Social Support in People with Pain: A Modified Delphi Study.Pain medicine (Malden, Mass.) · 2022Article
- Article
- Psychometric validation of the Chinese version of the PROMIS Social Relationships Short Forms.Nursing open · 2022Article
- Psychometric evaluation of the PROMIS social function short forms in Chinese patients with breast cancer.Health and quality of life outcomes · 2021Article
- Assessing vigilance in caregivers after traumatic brain injury: TBI-CareQOL Caregiver Vigilance.Rehabilitation psychology · 2020Article
- TBI-CareQOL military health care frustration in caregivers of service members/veterans with traumatic brain injury.Rehabilitation psychology · 2020Article
- Spirituality and outcomes in caregivers of persons with traumatic brain injury (TBI).Rehabilitation psychology · 2020Article
- Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL).Rehabilitation psychology · 2020Article
- Measuring emotional suppression in caregivers of adults with traumatic brain injury.Rehabilitation psychology · 2020Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
objectiveTo examine the reliability and validity of the short form (SF) and computer adaptive test (CAT) versions of the Patient-Reported Outcomes Measurement Information System (PROMIS) measures of social health of caregivers of civilians and service members/veterans (SMVs) with traumatic brain injury (TBI).
designSelf-report questionnaires administered through an online data collection platform.
settingHospital and community-based outreach at 3 TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility.
participantsCaregivers (N=560) (344 civilians and 216 military) of individuals with a documented TBI.
interventionNot applicable.
main outcome measuresA total of 5 PROMIS social health measures.
resultsAll 5 PROMIS social health measures exceeded the a priori criterion for internal consistency reliability (≥0.70); most PROMIS measures met the criterion for test-retest reliability (≥0.70) in the civilian sample; in the SMV sample, test-retest reliability was generally below this criterion, except for social isolation. For both samples, convergent validity was supported by moderate correlations between the 5 PROMIS social health measures and related measures, and discriminant validity was supported by low correlations between PROMIS social health measures and measures of dissimilar constructs. Most PROMIS scores indicated significantly worse social health in both samples of those caring for individuals who were low functioning. Finally, impairment rates in social health were elevated for those caring for low-functioning individuals, especially in the SMV sample.
conclusionsThe PROMIS CAT and SF social health measures have potential clinical utility for use in caregivers of civilians and SMVs with TBI.
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Registered trials
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