Evidence map›Paper›PMID 30075146›Full record

ArticleArchives of physical medicine and rehabilitation2019

The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank.

Noelle E Carlozzi, Michael A Kallen, Robin Hanks, Anna L Kratz, Elizabeth A Hahn, Tracey A Brickell, Rael T Lange, Louis M French, Phillip A Ianni, Jennifer A Miner and 1 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Archives of physical medicine and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

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  13. Validating the Use of TBI-CareQOL Measures in Caregivers of People Living With Dementia.American journal of Alzheimer's disease and other dementias
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Noelle E CarlozziDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI. Electronic address: carlozzi@med.umich.edu.
Michael A KallenDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL.
Robin HanksRehabilitation Institute of Michigan, Department of Psychology and Neuropsychology, Detroit, MI; Department of Physical Medicine and Rehabilitation, Wayne State University, Detroit, MI.
Anna L KratzDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI.
Elizabeth A HahnDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL.
Tracey A BrickellDefense and Veterans Brain Injury Center, Walter Reed National Military Medical Center, Bethesda, MD; National Intrepid Center of Excellence, Walter Reed National Military Medical Center, Bethesda, MD; Uniformed Services University of the Health Sciences, Bethesda, MD.
Rael T LangeDefense and Veterans Brain Injury Center, Walter Reed National Military Medical Center, Bethesda, MD; National Intrepid Center of Excellence, Walter Reed National Military Medical Center, Bethesda, MD; University of British Columbia, Vancouver, British Columbia, Canada.
Louis M FrenchDefense and Veterans Brain Injury Center, Walter Reed National Military Medical Center, Bethesda, MD; National Intrepid Center of Excellence, Walter Reed National Military Medical Center, Bethesda, MD; Uniformed Services University of the Health Sciences, Bethesda, MD.
Phillip A IanniDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI.
Jennifer A MinerDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI.
Angelle M SanderH. Ben Taub Department of Physical Medicine and Rehabilitation, Baylor College of Medicine and Harris Health System, Houston, TX; Brain Injury Research Center, TIRR Memorial Hermann, Houston, TX.

Funding

Michigan Institute for Clinical and Health Research (MICHR)UL1TR002240 · NCATS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI LUMENG, JULIE C, MASHOUR, GEORGE ALEXANDER · 2017 to 2022
$54.9M
Michigan Institute for Clinical and Health Research (MCHR)UL1TR000433 · NCATS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI MASHOUR, GEORGE ALEXANDER · 2012 to 2016
$49.9M
Quality of Life in Caregivers of Traumatic Brain Injury: The TBI-CareQOLR01NR013658 · NINR · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI CARLOZZI, NOELLE E. · 2012 to 2024
$6.0M
NCATS NIH HHS UL1 TR000433NCATS NIH HHS UL1 TR002240NINR NIH HHS R01 NR013658
6 · The paper itself

Abstract

objectiveTo develop a new patient-reported outcome measure that captures feelings of being trapped that are commonly experienced by caregivers of individuals with traumatic brain injury (TBI).

designCross-sectional.

settingThree TBI Model Systems rehabilitation hospitals, an academic medical center, and a military medical treatment facility.

participantsCaregivers (N=560) of civilians with TBI (n=344) and caregivers of service members/veterans with TBI (n=216).

interventionsNot applicable. OUTCOME MEASURES: Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) Feeling Trapped item bank.

resultsFrom an initial item pool of 28 items, exploratory and confirmatory factor analyses supported the retention of 16 items. After graded response model (GRM) and differential item functioning analyses were conducted, 15 items were retained in the final measure. GRM calibration data, along with clinical expert input, were used to choose a 6-item, static short form (SF), and the calibration data were used for programming of the TBI-CareQOL Feeling Trapped computer adaptive test (CAT). CAT simulation analyses produced an r=0.99 correlation between CAT scores and the full item bank. Three-week short-form test-retest reliability was very good (r=0.84).

conclusionsThe new TBI-CareQOL Feeling Trapped item bank was developed to provide a sensitive and efficient examination of the effect that feelings of being trapped, due to the caregiver role, have on health-related quality of life for caregivers of individuals with TBI. Both the CAT and corresponding 6-item SF demonstrate excellent psychometric properties. Future work is needed to establish the responsiveness of this measure to clinical interventions for these caregivers.

Indexed as

Adaptation, PsychologicalAdultBrain Injuries, TraumaticCaregiversComputer SimulationCross-Sectional StudiesDiagnosis, Computer-AssistedEmotionsFactor Analysis, StatisticalFemaleHumansMaleMiddle AgedMilitary PersonnelPsychometricsQualitative ResearchCaregiverHealth-related quality of lifePatient reported outcome measuresPsychometricsRehabilitationTraumatic brain injuryVeterans

Identifiers

PMID30075146
PMCPMC6422745

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.