ArticleMedical care2018
A Multilevel Approach to Stakeholder Engagement in the Formulation of a Clinical Data Research Network.
Article in Medical care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
41 citing papers in PubMed.
- Partner engagement for planning and development of non-pharmacological care pathways in the AIM-Back trial.Clinical trials (London, England) · 2023Trial
- Actively engaging multi-level stakeholders in cancer screening and cancer-related studies: a scoping review.Research involvement and engagement · 2026Article
- Identification of Training Needs and Development of a Work-Integrated Training Program for Aged Care On-Site Pharmacists: Protocol for a Co-Design Study.JMIR research protocols · 2026Article
- A multilevel adaptation approach for the sustainable scale-up of family cancer history screening in rural public health clinics.Archives of public health = Archives belges de sante publique · 2026Article
- Community consultation and public disclosure for the Randomized Trial of Sedative Choice for Intubation.Trials · 2026Article
- Development and Value of a Centralized Text Message-based Tracking and Support Program for the PRECIDENTD Study.Medical care · 2026Article
- Stakeholder engagement as a valuable tool to improve the relevance of research regarding framework development.npj veterinary sciences · 2026Article
- From product to knowledge: the life cycle of health technologies 2.0 as a framework for health system improvement.Frontiers in pharmacology · 2026Article
- Community feedback sessions: An adaptation of the community engagement studio model to enhance scalability.Journal of clinical and translational science · 2026Article
- Opportunities and Challenges for Designing in Connected Health: Insights From an Expert Workshop.Journal of medical Internet research · 2025Article
- Involving consumers in health research through the use of consumer panels: a scoping review.Research involvement and engagement · 2025Review
- Community Consultation and Public Disclosure for the Randomized Trial of Sedative Choice for Intubation.medRxiv : the preprint server for health sciences · 2025Article
- A Formative Evaluation of Interventions to Enhance Clinical Trial Diversity Guided by the Socioecological Model.Cancers · 2025Article
- Advancing the Science of Meaningful Community Engagement Strategies: Contributions From the Nationwide Health Equity Action Network.American journal of public health · 2025Article
- Researcher and community partner perspectives on community-engaged research during the COVID-19 pandemic.Journal of clinical and translational science · 2025Article
- Utilizing Crowdsourcing to Incorporate the Voice of the Family When Developing a Diabetes Distress Intervention.Diabetes spectrum : a publication of the American Diabetes Association · 2025Article
- Transdisciplinary training to address challenges in genomic epidemiology of infectious diseases.Frontiers in public health · 2025Article
- Helping Educators Learn Pediatric Pain Assessment and Intervention Needs Program (HELP PAIN): Program Development with Community Partners.Children (Basel, Switzerland) · 2024Article
- Evaluating patient participation in value-based healthcare: Current state and lessons learned.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Using Community Engagement Methods to Guide Study Protocol Decisions for School-Aged Children With Type 1 Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2024Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
objectivesTo ensure meaningful engagement of stakeholders (patients, clinicians, and communities) in developing the Mid-South Clinical Data Research Network (MS-CDRN), we implemented a comprehensive, multilevel approach: (1) identify barriers to involving stakeholders in governance, network design, and implementation; (2) engage stakeholders in priority setting and research topic generation; (3) develop strategies to fully integrate stakeholders in CDRN governance and oversight; and (4) solicit guidance on patient-centered tools and strategies for recruiting research participants.
methodsWe engaged stakeholders: (1) as integral research team members; (2) on oversight and advisory committees; (3) as consultants (using Community Engagement Studios); and (4) through interviews and surveys. We recruited stakeholders from community health centers, churches, barbershops, health fairs, a volunteer registry, and a patient portal. We prioritized recruitment from populations often underrepresented in research.
resultsDuring the first 18 months, we engaged 5670 stakeholders in developing the MS-CDRN. These were research team members and on governance committees (N=10), consultants (N=58), survey respondents (N=5543), and interviewees (N=59). Stakeholders identified important barriers and facilitators to engagement, developed stakeholder-informed policies, provided feedback on priority topics and research questions, and developed an intake process for data requests and interventional studies that included reviewing for appropriate patient-centeredness, patient engagement, and dissemination. DISCUSSION: Multilevel stakeholder engagement is a novel systematic approach to developing a meaningful patient-centered and patient-engaged research program. This approach allows ongoing input from highly engaged stakeholders while leveraging focused input from larger, more diverse groups to enhance the patient-centeredness of research and increase relevance to broader audiences.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.