Evidence map›Paper›PMID 30073470›Full record

SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2019

A systematic review of utility values in children with cerebral palsy.

Utsana Tonmukayakul, Long Khanh-Dao Le, Shalika Bohingamu Mudiyanselage, Lidia Engel, Jessica Bucholc, Brendan Mulhern, Rob Carter, Cathrine Mihalopoulos

Abstract readSystematic Review
PubMed Publisher
In one paragraph

Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. A systematic review of health state utility values for thyroid cancer.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021
    Pooled it
  2. A systematic review of utility values in children with cerebral palsy.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019
    Pooled it
  3. Estimating QALYs in adults with cerebral palsy: mapping the San Martin scale to the EQ-5D-5L for economic evaluation.The European journal of health economics : HEPAC : health economics in prevention and care · 2026
    Article
  4. The impact of cochlear implantation on health-related quality of life in older adults, measured with the Health Utilities Index Mark 2 and Mark 3.European archives of oto-rhino-laryngology : official journal of the European Federation of Oto-Rhino-Laryngological Societies (EUFOS) : affiliated with the German Society for Oto-Rhino-Laryngology - Head and Neck Surgery · 2022
    Article
  5. Article
  6. Cerebral palsy in Canada, 2011-2031: results of a microsimulation modelling study of epidemiological and cost impacts.Health promotion and chronic disease prevention in Canada : research, policy and practice · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Utsana TonmukayakulDeakin Health Economics, Centre for Population Health Research, Deakin University, Locked Bag 20000, Geelong, VIC, 3220, Australia. utsana.tonmukayakul@deakin.edu.au.ORCID http://orcid.org/0000-0002-6464-744X
Long Khanh-Dao LeDeakin Health Economics, Centre for Population Health Research, Deakin University, Locked Bag 20000, Geelong, VIC, 3220, Australia.
Shalika Bohingamu MudiyanselageDeakin Health Economics, Centre for Population Health Research, Deakin University, Locked Bag 20000, Geelong, VIC, 3220, Australia.
Lidia EngelDeakin Health Economics, Centre for Population Health Research, Deakin University, Locked Bag 20000, Geelong, VIC, 3220, Australia.
Jessica BucholcDeakin Health Economics, Centre for Population Health Research, Deakin University, Locked Bag 20000, Geelong, VIC, 3220, Australia.
Brendan MulhernCentre for Health Economics Research and Evaluation, University of Technology Sydney, 1-59 Quay Street, Hay Market, Sydney, NSW, 2000, Australia.
Rob CarterDeakin Health Economics, Centre for Population Health Research, Deakin University, Locked Bag 20000, Geelong, VIC, 3220, Australia.
Cathrine MihalopoulosDeakin Health Economics, Centre for Population Health Research, Deakin University, Locked Bag 20000, Geelong, VIC, 3220, Australia.

Funding

National Health and Medical Research Council APP 1057997
6 · The paper itself

Abstract

purposeProject aims include the following: (i) to identify reported utility values associated with CP in children aged ≤ 18 years; (ii) to explore utility value elicitation techniques in published studies; and (iii) to examine performance of the measures and/or elicitation approaches.

methodsPeer-reviewed studies published prior to March 2017 were identified from six electronic databases. Construct validity, convergent validity, responsiveness, and reliability of instruments were assessed.

resultsFive studies met the inclusion criteria. Utility values of hypothetical general CP states obtained from a general population of parents ranged from 0.55 to 0.88 using time trade off (TTO) and 0.60-0.87 using standard gamble (SG) techniques. Utility values reported by clinicians of three hypothetical spastic quadriplegic CP states, using the Health Utility Index Mark 2 (HUI-2), ranged from 0.40 to 0.13. Other sources of utilities identified were based on both proxy and child ratings using Health Utility Index Mark 3 (HUI-3) (values ranged from - 0.013 to 0.84 depending on the valuation source) and the Assessment of Quality of Life 4 Dimension instrument, with values ranging from 0.01 to 0.58. Construct validity of the HUI-3 varied from moderate to strong, whereas mixed results were found for convergent validity. Responsiveness and reliability were not reported.

conclusionThere was substantial variation in reported utilities. Indirect techniques (i.e. via multi-attribute utility instruments) were more frequently used than direct techniques (e.g. TTO, SG). Further research is required to improve the robustness of utility valuation of health-related quality of life in children with CP for use in economic evaluation.

Indexed as

AdolescentAdultCerebral PalsyFemaleHumansMaleQuality of LifeReproducibility of ResultsYoung AdultAdolescentCerebral palsyChildrenQuality-adjusted life yearsQuality of lifeUtility valueUtility weight

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.