SynthesisPloS one2018
Why is transition between child and adult services a dangerous time for young people with chronic kidney disease? A mixed-method systematic review.
Synthesis in PloS one, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Transition of children with life-limiting conditions to adult care and healthcare use: a systematic review.Pediatric research · 2021Pooled it
- Efficacy of the ALL YOU NEED IS LOVE healthcare transition syllabus among pre- and posttransplant adolescents in Cali, Colombia.BMC nephrology · 2025Trial
- The Palliation of Pediatric Kidney Transplantation.Pediatric transplantation · 2026Review
- Anxiety and depression symptomatology in adolescents with kidney disorders during transition: "perception of illness" and the "patient paradox".Pediatric nephrology (Berlin, Germany) · 2026Article
- Blood Pressure Control in Adolescents With CKD and Risk of Kidney Failure in Young Adulthood.Kidney medicine · 2026Article
- Mental health and kidney disease.Nature reviews. Nephrology · 2026Review
- Is Age Just a Number?: A Comparative Analysis of Glomerular Disease Across Ages from the Cure Glomerulonephropathy Network.Kidney360 · 2026Article
- Article
- Self-management for youth and young adults with childhood-onset chronic conditions: A scoping review of health care transition planning literature.Health care transitions · 2026Review
- 10 tips for a transition clinic from paediatric to adult nephrology.Clinical kidney journal · 2026Review
- Transition readiness assessment in adolescents and young adults with chronic intestinal failure on home parenteral nutrition: A descriptive cross-sectional study.JPEN. Journal of parenteral and enteral nutrition · 2025Article
- [Transition in nephrology].Innere Medizin (Heidelberg, Germany) · 2025Review
- Bridging the Gap: Assessing Nephrology Transition Practices in Pediatric and Adult Medical Centers.Clinical journal of the American Society of Nephrology : CJASN · 2025Article
- Transition from pediatric to adult nephropathic cystinosis care: the structure, challenges and lessons learned.Frontiers in pediatrics · 2025Review
- Inequalities in emergency care use across transition from paediatric to adult care: a retrospective cohort study of young people with chronic kidney disease in England.European journal of pediatrics · 2024Article
- Role of primary care in enhancing continuity of care for adolescents and young adults with chronic kidney disease undergoing transition to adult health services.Pediatric nephrology (Berlin, Germany) · 2024Article
- Exploring six successful nurse-led transition clinics: Experiences and outcomes.Health care transitions · 2024Article
- Supporting the parent-to-child transfer of self-management responsibility for chronic kidney disease: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Shifting responsibilities: A qualitative study of how young people assume responsibility from their parents for self-management of their chronic kidney disease.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Dialysis, Distress, and Difficult Conversations: Living with a Kidney Transplant.Healthcare (Basel, Switzerland) · 2022Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Young people age 14-25 years with chronic kidney disease have been identified as generally having poor health outcomes and are a high-risk group for kidney transplant loss due in part to poor self-management. This raises a key question as to what happens during transition from child to adult services? This paper presents a mixed-method systematic review of health and social care evidence concerning young people with chronic kidney disease transitioning from child to adult health and social care services. Quantitative and qualitative evidence were synthesised in streams followed by an overarching synthesis. Literature searches (2000 to March 2017) were conducted using Pubmed, BioMed Central and Cochrane Library, grey literature sources ZETOC, .gov.uk, third sector organisations, NHS Evidence, SCIE, TRIP, Opengrey. Snowball searching was conducted in the databases Ovid, CINAHL, ISI Web of Science, Scopus and Google Scholar. Of 3,125 records screened, 60 texts were included. We found that while strategies to support transition contained consistent messages, they supported the principle of a health-dominated pathway. Well-being is mainly defined and measured in clinical terms and the transition process is often presented as a linear, one-dimensional conduit. Individual characteristics, along with social, familial and societal relationships are rarely considered. Evidence from young people and their families highlights transition as a zone of conflict between independence and dependency with young people feeling powerless on one hand and overwhelmed on the other. We found few novel interventions and fewer that had been evaluated. Studies were rarely conducted by allied health and social care professionals (e.g. renal social workers and psychologists) as part of multi-disciplinary renal teams. We conclude that there is a lack of good evidence to inform providers of health and social care services about how best to meet the needs of this small but vulnerable cohort.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.