ArticleApplied clinical informatics2018
Leveraging Patient-Reported Outcomes Using Data Visualization.
Article in Applied clinical informatics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- A Systematic Review on Visualizations for Self-Generated Health Data for Daily Activities.International journal of environmental research and public health · 2022Pooled it
- Patient-Reported Outcome Measures in Registry-Based Studies of Type 2 Diabetes Mellitus: a Systematic Review.Current diabetes reports · 2019Pooled it
- Interventions to increase patient portal use in vulnerable populations: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2019Pooled it
- A Systematic Review of Patient-Facing Visualizations of Personal Health Data.Applied clinical informatics · 2019Pooled it
- A Targeted Literature Review and Patient Focus Groups to Develop Recommendations for Reporting Patient-Reported Measures to Patients and Consumers in Clinical Quality Registries.Health services insights · 2026Article
- A systematic review of strategies in digital technologies for motivating adherence to chronic illness self-care.npj health systems · 2025Article
- Collection of Patient-Reported Outcome Measures in Rural and Underserved Populations.Applied clinical informatics · 2025Article
- Creation of Text Vignettes Based on Patient-Reported Data to Facilitate a Better Understanding of the Patient Perspective: Design Study.JMIR human factors · 2025Article
- Improving the Implementation of Patient-Reported Outcome Measure in Clinical Practice: Tackling Current Challenges With Innovative Digital Communication Technologies.Journal of medical Internet research · 2025Article
- Using human-centered design to re-vision the emergency obstetric and newborn care framework: Insights from Bangladesh, Malawi and Senegal.PLOS global public health · 2025Article
- Review
- "It Attracts Your Eyes and Brain": Refining Visualizations for Shared Decision-Making with Heart Failure Patients.Applied clinical informatics · 2024Article
- Testing a Consumer Wearables Program to Promote the Use of Positive Airway Pressure Therapy in Patients With Obstructive Sleep Apnea: Protocol for a Pilot Randomized Controlled Trial.JMIR research protocols · 2024Article
- Perceptions of patient-reported outcome data access and sharing among patients with heart failure: ethical implications for research.European journal of cardiovascular nursing · 2024Article
- The Psoriatic Arthritis 5-Thermometer Scales (PsA-5Ts): Measurement Properties of a New Multidimensional Composite Tool for the Quick Assessment of the Overall Health Status in Psoriatic Arthritis.Journal of personalized medicine · 2023Article
- Global use of electronic patient-reported outcome systems in nephrology: a mixed methods study.BMJ open · 2023Review
- Involving Older People With Frailty or Impairment in the Design Process of Digital Health Technologies to Enable Aging in Place: Scoping Review.JMIR human factors · 2023Article
- Patients' and Psychologists' Preferences for Feedback Reports on Expected Mental Health Treatment Outcomes: A Discrete-Choice Experiment.Administration and policy in mental health · 2022Article
- The Application of Human-Centered Design Approaches in Health Research and Innovation: A Narrative Review of Current Practices.JMIR mHealth and uHealth · 2021Review
- Clinician Use of HIV-Related Infographics During Clinic Visits in the Dominican Republic is Associated with Lower Viral Load and Other Improvements in Health Outcomes.AIDS and behavior · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundHealth care organizations increasingly use patient-reported outcomes (PROs) to capture patients' health status. Although federal policy mandates PRO collection, the challenge remains to better engage patients in PRO surveys, and ensure patients comprehend the surveys and their results.
objectiveThis article identifies the design requirements for an interface that assists patients with PRO survey completion and interpretation, and then builds and evaluates the interface.
methodsWe employed a user-centered design process that consisted of three stages. First, we conducted qualitative interviews and surveys with 13 patients and 11 health care providers to understand their perceptions of the value and challenges associated with the use of PRO measures. Second, we used the results to identify design requirements for an interface that collects PROs, and designed the interface. Third, we conducted usability testing with 12 additional patients in a hospital setting.
resultsIn interviews, patients and providers reported that PRO surveys help patients to reflect on their symptoms, potentially identifying new opportunities for improved care. However, 6 out of 13 patients reported significant difficultly in understanding PRO survey questions, answer choices and results. Therefore, we identified aiding comprehension as a key design requirement, and incorporated visualizations into our interface design to aid comprehension. In usability testing, patients found the interface highly usable.
conclusionFuture interfaces designed to collect PROs may benefit from employing strategies such as visualization to aid comprehension and engage patients with surveys.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.