ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2019
Priorities for caregiver research in cancer care: an international Delphi survey of caregivers, clinicians, managers, and researchers.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
33 citing papers in PubMed, 60 citations in OpenAlex.
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- Caregivers as essential members of healthcare teams: lessons learned from enforcement of the "no visitors" policy during the COVID-19 pandemic in Ontario, Canada.BMC health services research · 2026Article
- FamCASP-A Support Model for Individualised Support for Family Members in Routine Cancer Care: Development and Validation.Scandinavian journal of caring sciences · 2025Article
- Fertility information support experiences of spouses of young breast cancer patients in China: a qualitative study.BMJ open · 2025Article
- Aiming for survival: a qualitative single case study of support for family members across the care process in outpatient colorectal cancer care.BMC cancer · 2025Article
- Caregiver costs and financial burden in caregivers of African American cancer survivors.Journal of cancer survivorship : research and practice · 2024Article
- Perceived importance of emotional support provided by health care professionals and social networks: Should we broaden our focus for the delivery of supportive care?Asia-Pacific journal of clinical oncology · 2023Article
- Psychosocial Experiences, Challenges, and Recommendations for Care Delivery among Partners of Breast Cancer Survivors: A Qualitative Study.International journal of environmental research and public health · 2023Article
- Comparing an in-person workshop and a postal Delphi survey for involving health service users in health care and health research prioritization.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Patients' representation of oncological disease: psychological aspects in the cancer journey.Frontiers in psychology · 2023Article
- Article
- Economic hardship among principal family caregivers of cancer patients at Khartoum oncology hospital 2020: a cross-sectional study.BMC health services research · 2022Article
- Clinical Nurses Research Priorities in Hospital Settings: A Delphi Survey.Western journal of nursing research · 2022Article
- The quality of life of regional and remote cancer caregivers in Australia.European journal of cancer care · 2022Article
- Caregivers' Experience of Medication Adherence Barriers during Pediatric Hematopoietic Stem Cell Transplant: A Qualitative Study.Journal of pediatric psychology · 2022Article
- To share or not to share: communication of caregiver-reported outcomes when a patient has colorectal cancer.Journal of patient-reported outcomes · 2022Article
- Impact of Systematic Holistic Nursing Combined with Narrative Nursing Intervention for Patients with Advanced Gastric Cancer on Complications and Negative Emotions.Evidence-based complementary and alternative medicine : eCAM · 2022Article
- Involving stakeholders in research priority setting: a scoping review.Research involvement and engagement · 2021Article
- An Evaluation of Natural Environment Interventions for Informal Cancer Caregivers in the Community.International journal of environmental research and public health · 2021Review
Corrections and comments
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Authors and funding
14 authors at 7 institutions in 3 countries.
Funding
Abstract
purposeWith an increased investment in psychosocial caregiving research, it becomes critical to establish the need for data of key stakeholders and future strategic directions. The purpose of this international Delphi study was to engage caregivers, clinicians, researchers, and managers to identify priority topics for caregiver research in cancer care.
methodsA three-round, online Delphi survey took place. In round 1, stakeholders generated caregiver research topics by answering an open-ended question. Content analysis of stakeholders' answers identified topics to be included in the round 2 survey to rate their importance. The round 3 survey included topics with less than 80% agreement for stakeholders to reconsider in light of other participants' responses.
resultsIn round 1, eighty-six topics were generated by 103 clinicians, 63 researchers, 61 caregivers, and 22 managers and grouped into 10 content areas: impact of cancer, support programs, vulnerable caregivers, technology, role in health care, caregiver-centered care, knowledge translation, environmental scan, financial cost of caregiving, and policy. Across rounds 2 and 3, nine topics achieved consensus for all stakeholder panels (e.g., home care interventions), with three of these emphasizing more research needed on the financial impact of informal caregiving (e.g., financial impact of "burnout" for caregivers and society). Of note, vulnerable caregivers and use of technology were content areas prioritized particularly by managers and researchers, but not caregivers.
conclusionBy establishing a confluence of perspectives around research priorities, this study ensures the interests of key stakeholders are integrated in strategic directions, increasing the likelihood of research capable of influencing practice, education, and policy.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.