ArticleIntensive & critical care nursing2019
Parent perceptions of the impact of the Paediatric Intensive Care environment on delivery of family-centred care.
Article in Intensive & critical care nursing, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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Who cites it
19 citing papers in PubMed.
- Perceived family-centered care and post-traumatic stress in parents of infants cared for in the paediatric cardiac intensive care unit.Nursing in critical care · 2024Trial
- Integrating between cultural competence and humility: a qualitative study of Israeli pediatric cardiologists.International journal for equity in health · 2026Article
- Parents' Perspectives of Child-Centred Care: A Qualitative Study With Parents After Paediatric Intensive Care Units Discharge.Nursing in critical care · 2026Article
- Implementation of a partnership involving parents in the care of critically ill children: an integrative review.Acute and critical care · 2025Article
- Parents as First Responders: Experiences of Emergency Care in Children with Nemaline Myopathy: A Qualitative Study.Nursing reports (Pavia, Italy) · 2025Article
- Evaluation of Satisfaction With Care in Paediatric Intensive Care Units: Swedish Parents' Perspective.Nursing in critical care · 2025Article
- Nurses' Experiences of the Quality of Family-Centered Patient Counselling in Paediatric Delirium: A Qualitative Descriptive Study.Nursing open · 2025Article
- Juxtaposing Nurses' and Patients' Perspectives of Missed Nursing Care: A Descriptive Mixed Method Design.Journal of advanced nursing · 2025Article
- Parent communication with care teams and preparation for family meetings in the paediatric cardiac ICU: a qualitative study.Cardiology in the young · 2024Article
- Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions.Journal of child health care : for professionals working with children in the hospital and community · 2023Article
- "More life and more days"-patient and care characteristics in a specialized acute pediatric palliative care inpatient unit.European journal of pediatrics · 2023Article
- Searching for human connection to transcend symbolisms in pediatric palliative care.Revista brasileira de enfermagem · 2023Article
- Patient and family-centered care for children: A concept analysis.Belitung nursing journal · 2023Article
- The Parent Role in Advocating for a Deteriorating Child: A Qualitative Study.Hospital pediatrics · 2020Article
- Lived experiences of cardiovascular postoperative care in pediatric and neonatal critical care: The parents' experience.Revista CuidarteArticle
- Nurses' Experiences of the Prerequisites for Implementing Family-Centered Care to Prevent Pediatric Delirium.Clinical nurse specialist CNSArticle
- Challenges and coping between parents in shared decision-making for children with complex, life-threatening conditions: A qualitative content analysis.Journal of pediatric nursingArticle
- Integrating Neonatal Intensive Care Into a Family Birth Center: Describing the Integrated NICU (I-NIC).The Journal of perinatal & neonatal nursingArticle
- Multiple Roles of Parental Caregivers of Children with Complex Life-Threatening Conditions: A Qualitative Descriptive Analysis.Journal of pediatric nursingArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
objectivesTo examine parent perception of how the physical and cultural environment of the paediatric intensive care unit impacted the implementation of family-centred care as outlined by the Institute for Patient and Family Centered Care. RESEARCH
designA qualitative descriptive design utilizing secondary analysis from a longitudinal study. Sixty-one interviews with three mothers and three fathers (31 interviews with mothers, 30 interviews with fathers) of infants with complex congenital heart defects treated in a paediatric intensive care unit were subjected to secondary analysis via content analysis. The previously completed individual interviews with parents took place at least monthly ranging from soon after birth of their infant to one year of age or infant death, whichever occurred first.
findingsThe family-centred care core concepts of information sharing, participation, respect and dignity were present in parent interviews. Parents indicated that the physical and cultural environment of the pediatric intensive care unit impacted their perceptions of how each of the core concepts was implemented by clinicians. The unit environment both positively and negatively impacted how parents experienced their infant's hospitalisation.
conclusionIn the paediatric intensive care unit, family centred care operationalised as policy differed from actual parent experiences. The impact of the physical and cultural environment should be considered in the delivery of critical care, as the environment was shown to impact implementation of each of the core concepts.
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