ArticleEuropean journal of oncology nursing : the official journal of European Oncology Nursing Society2018
A systematic scoping review of the recent literature (∼2011-2017) about the costs of illness to parents of children diagnosed with cancer.
Article in European journal of oncology nursing : the official journal of European Oncology Nursing Society, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06814795 (Feasibility of Medically Tailored Meals for Pediatric Populations at Risk for Disparities in Serious Illness Outcomes Due to Inequities in Social Drivers of Health), which is not on this map. Cited by 21 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Feasibility of Medically Tailored Meals for Pediatric Populations at Risk for Disparities in Serious Illness Outcomes Due to Inequities in Social Drivers of Health (MTM-Kids)
Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A Systematic Review of Methods Used by Pediatric Cost-Utility Analyses to Include Family Spillover Effects.PharmacoEconomics · 2024Pooled it
- Financial hardship in families of children or adolescents with cancer: a systematic literature review.The Lancet. Oncology · 2023Pooled it
- Bridging the gap in pediatric cancer rehabilitation care: a multi-perspective survey study.Frontiers in pediatrics · 2026Article
- Stress and Support Present in Medical Crowdfunding in Pediatric Cancer.Cancer reports (Hoboken, N.J.) · 2025Article
- Baseline Characteristics of Parents Enrolled in Children's Oncology Group Study ACCL20N1CD: Financial Toxicity During Treatment for Pediatric Acute Lymphoblastic Leukemia in the United States.Pediatric blood & cancer · 2025Article
- Financial Distress Screening and Navigation in Pediatric Oncology Within the National Cancer Institute Community Oncology Research Program.JCO oncology practice · 2025Article
- Parents' experiences on handling paediatric anticancer drugs at home after an educational intervention.Journal of evaluation in clinical practice · 2025Article
- Financial burden faced by breastfeeding mothers caring for children diagnosed with cancer in Ghana; an exploratory qualitative study.BMC women's health · 2024Article
- "You Have to Rob Peter to Pay Paul So Your Kid Can Breathe": Using Qualitative Methods to Characterize Trade-Offs and Economic Impact of Asthma Care Costs.Medical care · 2023Article
- Impact of childhood and adolescence cancer on family caregivers: a qualitative analysis of strains, resources and coping behaviours.BMC psychology · 2023Article
- Developing a Conceptual Framework for Socioeconomic Impact Research in European Cancer Patients: A 'Best-Fit' Framework Synthesis.The patient · 2023Article
- Losing a child to adolescent cancer: A register-based cohort study of psychotropic medication use in bereaved parents.Cancer medicine · 2023Article
- Physical and socioeconomic burden of caregiving on family caregivers of children with cancer at a tertiary Hospital in Ghana.Nursing open · 2023Article
- Research on the Economics of Cancer-Related Health Care: An Overview of the Review Literature.Journal of the National Cancer Institute. Monographs · 2022Review
- Rationale and design of Children's Oncology Group (COG) study ACCL20N1CD: financial distress during treatment of acute lymphoblastic leukemia in the United States.BMC health services research · 2022Article
- Article
- Newborn Screening for the Detection of theCancers · 2021Article
- He knew more than we wanted him to know: Parent perceptions about their children's sense of pediatric cancer-related financial problems.Pediatric blood & cancer · 2021Article
- Fathers' psychological responses to pediatric cancer-induced financial distress.Pediatric blood & cancer · 2020Article
- Observational
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
purposeThe study purpose was to map and identify gaps in the recent (∼2011-2017) literature on the costs of illness to parents of children diagnosed with cancer. The costs of illness include direct costs, indirect costs and psychosocial costs.
methodsA systematic scoping review was conducted. Data sources included PubMed, CINAHL, PsychInfo and EconLit. Studies were eligible for inclusion if they were conducted in high-income countries, published in the English language, and reported parent perspectives on direct costs, indirect costs and/or psychosocial costs due to financial costs.
results25 studies were eligible. Most were conducted in Canada, the USA, or Sweden. The studies used a variety of designs, target populations, time frames and sample sizes. Intervention studies were lacking. Across studies fathers were underrepresented. While no study comprehensively measured costs of illness, more studies used rigorous methods and considered psychosocial costs. Financial costs were measured using a micro-costing or general estimates approach. Psychosocial costs were measured using a variety of PRO measures, some of which were investigator developed. The studies provide evidence that financial toxicity occurs in pediatric oncology.
conclusionsFuture studies should comprehensively measure costs using a consistent set of established measures and make efforts to recruit fathers to cost of illness research. Interventions to mitigate financial toxicity are needed.
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Registered trials
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