ArticlePloS one2018
Fostering population-based cohort data discovery: The Maelstrom Research cataloguing toolkit.
Article in PloS one, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed.
- Long-Term Trajectories of Multidimensional Outcomes in Psychosis Following Early Intervention During the Critical Period: The PEPP-Montreal 10+ Study Protocol.Early intervention in psychiatry · 2026Article
- The Swiss Personalized Health Network Metadata Catalog: Platform for Health Data Discovery and Exploration Based on Findable, Accessible, Interoperable, and Reusable Principles.JMIR medical informatics · 2026Article
- Can Psychiatric Genetics Advance Without Incorporating a Life Course Perspective?Biological psychiatry · 2026Review
- Canadian Metadata Catalogue for Health Science Research.International journal of population data science · 2026Article
- Co-RESPOND: a federated network of cohorts on mental health and adversity during the COVID-19 pandemic. Challenges, solutions and recommendations for retrospective data harmonization.European journal of psychotraumatology · 2025Observational
- The landscape of pregnancy and prepregnancy cohorts: a scoping review.BMC pregnancy and childbirth · 2025Article
- Toward a Domain-Overarching Metadata Schema for Making Health Research Studies FAIR (Findable, Accessible, Interoperable, and Reusable): Development of the NFDI4Health Metadata Schema.JMIR medical informatics · 2025Article
- Quantifying the impact of biobanks and cohort studies.Proceedings of the National Academy of Sciences of the United States of America · 2025Article
- Semantic enrichment of Pomeranian health study data using LOINC and WHO-FIC terminology mapping principles.JAMIA open · 2025Article
- Exploring Metadata Catalogs in Health Care Data Ecosystems: Taxonomy Development Study.JMIR formative research · 2025Article
- Phenotypic Environmental Sensitivity and Mental Health During Pregnancy and Post Partum: Protocol for the Experiences of Pregnancy Longitudinal Cohort Study.JMIR research protocols · 2023Article
- Chronic disease outcome metadata from German observational studies - public availability and FAIR principles.Scientific data · 2023Article
- Accelerometer-Measured Physical Activity Data Sets (Global Physical Activity Data Set Catalogue) That Include Markers of Cardiometabolic Health: Systematic Scoping Review.Journal of medical Internet research · 2023Article
- Assistive technology access in longitudinal datasets: a global review.International journal of population data science · 2023Review
- An integrative approach for the analysis of risk and health across the life course: challenges, innovations, and opportunities for life course research.Discover social science and health · 2023Review
- Whole Person Modeling: a transdisciplinary approach to mental health research.Discover mental health · 2023Review
- The health, work, and retirement study: representing experiences of later life in Aotearoa New Zealand.Journal of the Royal Society of New Zealand · 2023Article
- Opportunities for improving data sharing and FAIR data practices to advance global mental health.Global mental health (Cambridge, England) · 2023Review
- Challenges of data sharing in European Covid-19 projects: A learning opportunity for advancing pandemic preparedness and response.The Lancet regional health. Europe · 2022Review
- Towards an Interoperable Ecosystem of Research Cohort and Real-world Data Catalogues Enabling Multi-center Studies.Yearbook of medical informatics · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe lack of accessible and structured documentation creates major barriers for investigators interested in understanding, properly interpreting and analyzing cohort data and biological samples. Providing the scientific community with open information is essential to optimize usage of these resources. A cataloguing toolkit is proposed by Maelstrom Research to answer these needs and support the creation of comprehensive and user-friendly study- and network-specific web-based metadata catalogues.
methodsDevelopment of the Maelstrom Research cataloguing toolkit was initiated in 2004. It was supported by the exploration of existing catalogues and standards, and guided by input from partner initiatives having used or pilot tested incremental versions of the toolkit.
resultsThe cataloguing toolkit is built upon two main components: a metadata model and a suite of open-source software applications. The model sets out specific fields to describe study profiles; characteristics of the subpopulations of participants; timing and design of data collection events; and datasets/variables collected at each data collection event. It also includes the possibility to annotate variables with different classification schemes. When combined, the model and software support implementation of study and variable catalogues and provide a powerful search engine to facilitate data discovery.
conclusionsThe Maelstrom Research cataloguing toolkit already serves several national and international initiatives and the suite of software is available to new initiatives through the Maelstrom Research website. With the support of new and existing partners, we hope to ensure regular improvements of the toolkit.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.