Evidence map›Paper›PMID 30033554›Full record

ArticleCongenital heart disease2018

Functional limitations and educational needs among children and adolescents with heart disease.

Sherry L Farr, Karrie F Downing, Tiffany Riehle-Colarusso, Ginnie Abarbanell

Abstract readMulticenter Study
In one paragraph

Article in Congenital heart disease, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Sherry L FarrNational Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.ORCID http://orcid.org/0000-0002-9773-9009
Karrie F DowningNational Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.ORCID http://orcid.org/0000-0002-3063-1781
Tiffany Riehle-ColarussoNational Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.
Ginnie AbarbanellNational Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.ORCID http://orcid.org/0000-0001-6182-2663

Funding

Intramural CDC HHS CC999999
6 · The paper itself

Abstract

objectiveTo examine how cognitive and motor limitations in children with heart disease are associated with education and participation in extracurricular activities.

designUsing 2009-2010 parent-reported data from the National Survey of Children with Special Health Care Needs (NS-CSHCN), we examined prevalence of five functional limitations (learning/concentration, communication, self-care, gross motor skills, and fine motor skills) by diagnosed heart disease status using chi-square tests and multivariable logistic regression. Among CSHCN with heart disease, we examined the associations between severity of each functional limitation and missing ≥11 days of school in the past year, receiving special education services, and interference with extracurricular activities.

resultsCSHCN with heart disease (n = 1,416), compared to CSHCN without (n = 28,385), more commonly had "a lot" of difficulty in the five functional areas (P < .01; adjusted odds ratios: 1.8-3.3). Among CSHCN with heart disease, "a lot" of difficulty with learning/concentration was most common (35%), followed by communication (21%), self-care (14%), gross motor skills (12%), and fine motor skills (10%). Among CSHCN with heart disease, compared to those without, respectively, 27% and 15% missed ≥11 days of school, 45% and 29% received special education services, and 49% and 29% experienced interference with extracurricular activities (P < .01 for all). Level of difficulty with the five functional areas was associated with receipt of special education services and participation in extracurricular activities (P < .001).

conclusionThese results support the American Heart Association recommendations to screen children with congenital heart disease for age-appropriate development and provide services when needed.

Indexed as

Population SurveillanceAdolescentChildChild, PreschoolCross-Sectional StudiesFemaleFollow-Up StudiesHealth Services Needs and DemandHeart DiseasesHumansIncidenceInfantInfant, NewbornMaleMotor ActivityRetrospective Studiescongenital heart defectcongenital heart diseaseintellectual disabilitymotor skillsschool absenteeismspecial education

Identifiers

PMID30033554
PMCPMC6266870

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.