Evidence map›Paper›PMID 30022409›Full record

Trial reportJournal of general internal medicine2018

Patient-Family Agenda Setting for Primary Care Patients with Cognitive Impairment: the SAME Page Trial.

Jennifer L Wolff, Debra L Roter, Cynthia M Boyd, David L Roth, Diane M Echavarria, Jennifer Aufill, Judith B Vick, Laura N Gitlin

3 registry-linked trialsAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Journal of general internal medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 3 registered trials, which are not on this map. Cited by 33 papers.

0numbers the graph read from it
0cells of the map it votes in
33citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02986958 nacompletednot on this map

Involving Family to Improve Primary Care Visits for Cognitively Impaired Patients

TypeinterventionalSponsorJohns Hopkins Bloomberg School of Public HealthRan2016 to 2017Enrolled93ConditionsCognitive ImpairmentArmsPre-visit patient-family agenda-setting checklist, Usual care
NCT04593472 nacompletednot on this mapstarted 2020, after this paper: background citation

Sharing Healthcare Wishes in Primary Care

TypeinterventionalSponsorJohns Hopkins UniversityRan2020 to 2025Enrolled273ConditionsCognitive ImpairmentArmsSharing Healthcare Wishes in Primary Care (SHARE), Minimally Enhanced Usual Care
NCT04819191 nacompletednot on this mapstarted 2021, after this paper: background citation

Improving Communication for Primary Care Patients (SHARING Choices)

TypeinterventionalSponsorJohns Hopkins UniversityRan2021 to 2023Enrolled64,915ConditionsAdvance Care Planning, DementiaArmsSHARING Choices
3 · Its place in the literature

Who cites it

33 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jennifer L WolffRoger C. Lipitz Center for Integrated Health Care, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA. jwolff2@jhu.edu.
Debra L RoterDepartment of Health, Behavior, and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Cynthia M BoydDivision of Geriatric Medicine and Gerontology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
David L RothDivision of Geriatric Medicine and Gerontology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Diane M EchavarriaRoger C. Lipitz Center for Integrated Health Care, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Jennifer AufillRoger C. Lipitz Center for Integrated Health Care, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Judith B VickEdward D. Miller Research Building, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Laura N GitlinCollege of Nursing and Health Professions, Drexel University, Philadelphia, PA, USA.

Funding

Strengthening Informal Support Resources with Strategic Methodological AdvancesP30AG048773 · NIA · JOHNS HOPKINS UNIVERSITY · PI ROTH, DAVID L · 2014 to 2018
$2.0M
Involving Family to Improve Primary Care Visits for Cognitively Impaired PatientsR21AG049967 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2015 to 2016
$446k
NIA NIH HHS P30 AG048773NIA NIH HHS R21 AG049967
6 · The paper itself

Abstract

backgroundEstablishing priorities for discussion during time-limited primary care visits is challenging in the care of patients with cognitive impairment. These patients commonly attend primary care visits with a family companion.

objectiveTo examine whether a patient-family agenda setting intervention improves primary care visit communication for patients with cognitive impairment

designTwo-group pilot randomized controlled study

participantsPatients aged 65 + with cognitive impairment and family companions (n = 93 dyads) and clinicians (n = 14) from two general and one geriatrics primary care clinic

interventionA self-administered paper-pencil checklist to clarify the role of the companion and establish a shared visit agenda MEASUREMENTS: Patient-centered communication (primary); verbal activity, information disclosure including discussion of memory, and visit duration (secondary), from audio recordings of visit discussion

resultsDyads were randomized to usual care (n = 44) or intervention (n = 49). Intervention participants endorsed an active communication role for companions to help patients understand what the clinician says or means (90% of dyads), remind patients to ask questions or ask clinicians questions directly (84% of dyads), or listen and take notes (82% of dyads). Intervention dyads identified 4.4 health issues for the agenda on average: patients more often identified memory (59.2 versus 38.8%; p = 0.012) and mood (42.9 versus 24.5%; p = 0.013) whereas companions more often identified safety (36.7 versus 18.4%; p = 0.039) and personality/behavior change (32.7 versus 16.3%; p = 0.011). Communication was significantly more patient-centered in intervention than in control visits at general clinics (p < 0.001) and in pooled analyses (ratio of 0.86 versus 0.68; p = 0.046). At general clinics, intervention (versus control) dyads contributed more lifestyle and psychosocial talk (p < 0.001) and less biomedical talk (p < 0.001) and companions were more verbally active (p < 0.005). No intervention effects were found at the geriatrics clinic. No effect on memory discussions or visit duration was observed.

conclusionPatient-family agenda setting may improve primary care visit communication for patients with cognitive impairment.

trial registrationClinicalTrials.gov : NCT02986958.

Indexed as

ChecklistCognitive DysfunctionOffice VisitsPhysician-Patient RelationsPrimary Health CareProfessional-Family RelationsAgedFamilyFemaleHumansMalePatient-Centered CarePilot ProjectsQuality Improvementcognitive impairmentdementiafamily caregivinghealth communicationprimary care

Identifiers

PMID30022409
PMCPMC6108993

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.