ArticleContemporary clinical trials communications2018
Researchers' experiences with and perceptions of returning results to participants: Study protocol.
Article in Contemporary clinical trials communications, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed.
- Awareness of Medical Professionals Regarding Research Ethics in a Tertiary Care Hospital in Riyadh, Saudi Arabia: A Survey to Assess Training Needs.Healthcare (Basel, Switzerland) · 2023Article
- Return of Participants' Incidental Genetic Research Findings: Experience from a Case-Control Study of Asthma in an American Indian Community.Journal of personalized medicine · 2023Article
- Rural Research Network to engage rural and minority community members in translational research.Journal of clinical and translational research · 2023Article
- Returning study results to research participants: Data access, format, and sharing preferences.International journal of medical informatics · 2023Article
- Return of Participants' Incidental Genetic Research Findings: Experience from a Case-Control Study of Asthma in an American Indian Community.Research square · 2023Article
- Developing video education materials for the return of genomic test results to parents and adolescents.PEC innovation · 2022Article
- Understanding the Return of Genomic Sequencing Results Process: Content Review of Participant Summary Letters in the eMERGE Research Network.Journal of personalized medicine · 2020Article
- "The results are encouragements to make positive changes to be healthier:" qualitative evaluation of Marshallese participants' perceptions when receiving study results in a randomized control trial.Contemporary clinical trials communications · 2020Article
- Study protocol for a multilevel diabetes prevention program for Marshallese Pacific Islanders in faith-based organizations.Contemporary clinical trials communications · 2020Article
- Revised Common Rule Changes to the Consent Process and Consent Form.Ochsner journal · 2020Review
- Characterizing health researcher barriers to sharing results with study participants.Journal of clinical and translational science · 2019Article
- Health researchers' experiences, perceptions and barriers related to sharing study results with participants.Health research policy and systems · 2019Article
- First Do No Harm: Ethical Concerns of Health Researchers That Discourage the Sharing of Results With Research Participants.AJOB empirical bioethicsArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
backgroundHealth research participants want to receive the results from research studies in which they have participated, and health research funding agencies encourage the returning of results to research participants. However, researchers rarely return results to research participants. This study protocol aims to fill the significant gap in knowledge that exists regarding experiences, perceptions, and challenges health researchers have with returning results to research participants.
designThe study will use a mixed-methods concurrent triangulation design that will collect qualitative and quantitative data in one simultaneous phase to allow researchers to utilize each type of data to corroborate the findings from the other. The research team developed a mixed-methods survey to assess the experiences, perceptions, and challenges health researchers have with returning results to research participants.
methodThe survey includes both quantitative and qualitative (open-ended) questions and will be implemented online and will take approximately 10-15 min for respondents to complete. The survey is divided into four topics areas, which include respondents': 1) general opinion of returning results to participants in health research studies, 2) experiences with a specific study in which they did not return results to participants, 3) perceptions of specific challenges they face in returning results to participants, and 4) demographic characteristics and professional background information. SUMMARY: The study to be conducted will address knowledge gaps related to researchers' experiences, perceptions, and challenges with returning research results. The study is an important step toward pragmatic solutions that can improve researchers' ability to return results to participants.
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Registered trials
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