ArticleResearch involvement and engagement2018
Using qualitative research perspectives to inform patient engagement in research.
Article in Research involvement and engagement, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers and Facilitators of Physical Activity in People Living With HIV: A Systematic Review of Qualitative Studies.Journal of the International Association of Providers of AIDS CarePooled it
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- Effective approaches to public involvement in care home research: a systematic review and narrative synthesis.Research involvement and engagement · 2023Article
- The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network: Perspectives of researchers and patient partners.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Patient Engagement in Health Research: Perspectives from Patient Participants.Current oncology (Toronto, Ont.) · 2023Article
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- Enhancing Neurofibromatosis Clinical Trial Outcome Measures Through Patient Engagement: Lessons From REiNS.Neurology · 2021Article
- Disparities in Research Participation by Level of Health Literacy.Mayo Clinic proceedings · 2021Article
- Environmental Awareness for Patients with COPD Undergoing Pulmonary Rehabilitation: Is It of Added Value?International journal of environmental research and public health · 2020Article
- Lessons for Patient Engagement in Research in Low- and Middle-Income Countries.Ophthalmology and therapy · 2020Article
- Designing a tool to support patient and public involvement in research projects: the Involvement Matrix.Research involvement and engagement · 2020Article
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Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
plain english summaryIn Canada, and internationally, there is an increased demand for patient engagement in health care research. Patients are being involved throughout the research process in a variety of roles that extend beyond the traditional passive participant role. These practices, referred to collectively as 'patient engagement', have raised questions about how to engage patients in the research process. Specifically, researchers have noted a lack of theory underpinning patient engagement and are looking for guidance on how to select patients and engage patients throughout the research process. In this commentary, we draw on qualitative research perspectives to generate theoretical and methodological ideas that novice or experienced researchers can apply to facilitate patient engagement in research. ABSTRACT: Despite the recent advancements in patient engagement in health care research, there is limited research evidence regarding the best strategies for developing and supporting research partnerships with patients and caregivers. Three particular outstanding concerns that have been reported in the literature and that we will explore in this commentary are: (i) the lack of theoretical underpinning to inform the practice of patient engagement in research; (ii) the lack of knowledge regarding how to select patients to engage in research; and (iii) the lack of clear guidance about the best methods for engaging patients in research. We draw on qualitative research perspectives to reflect on these three areas of concern and propose insights into the theory and methods that we believe are useful for engaging patients in research.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.