ArticleBMC family practice2018
Challenges in supporting lay carers of patients at the end of life: results from focus group discussions with primary healthcare providers.
Article in BMC family practice, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
10 citing papers in PubMed, 23 citations in OpenAlex.
- Article
- Epidemiological profile of people with spinal cord injury in Ecuador: A population-based design and cohort profile.The journal of spinal cord medicine · 2026Article
- Building bridges of excellence: a comprehensive competence framework for nurses in hospice and palliative care-a mixed method study.BMC palliative care · 2023Article
- Supporting family carers in general practice: a scoping review of clinical guidelines and recommendations.BMC primary care · 2023Article
- Experiences of engaging a death doula: qualitative interviews with bereaved family members.Palliative care and social practice · 2023Article
- Quality of end-of-life care in general practice - a pre-post comparison of a two-tiered intervention.BMC primary care · 2022Article
- Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals.International journal of environmental research and public health · 2022Article
- Improving primary palliative care - a Delphi consensus study on measures for general practice in Germany.BMC primary care · 2022Article
- Article
- GPs' perspective on End-of-Life Care - an evaluation based on the German version of the General Practice End of Life Care Index.German medical science : GMS e-journal · 2020Article
Corrections and comments
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily caregivers (FCGs) of patients at the end of life (EoL) cared for at home receive support from professional and non-professional care providers. Healthcare providers in general practice play an important role as they coordinate care and establish contacts between the parties concerned. To identify potential intervention targets, this study deals with the challenges healthcare providers in general practice face in EoL care situations including patients, caregivers and networks.
methodsFocus group discussions with general practice teams in Germany were conducted to identify barriers to and enablers of an optimal support for family caregivers. Focus group discussions were analysed using content analysis.
resultsNineteen providers from 11 general practices took part in 4 focus group discussions. Participants identified challenges in communication with patients, caregivers and within the professional network. Communication with patients and caregivers focused on non-verbal messages, communicating at an appropriate time and perceiving patient and caregiver as a unit of care. Practice teams perceive themselves as an important part of the healthcare network, but also report difficulties in communication and cooperation with other healthcare providers.
conclusionHealthcare providers in general practice identified relational challenges in daily primary palliative care with potential implications for EoL care. Communication and collaboration with patients, caregivers and among healthcare providers give opportunities for improving palliative care with a focus on the patient-caregiver dyad. It is insufficient to demand a (professional) support network; existing structures need to be recognized and included into the care.
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