SynthesisBMJ open2018
'Who Cares?' The experiences of caregivers of adults living with heart failure, chronic obstructive pulmonary disease and coronary artery disease: a mixed methods systematic review.
Synthesis in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Home-based versus centre-based cardiac rehabilitation.The Cochrane database of systematic reviews · 2023Pooled it
- PRHOCARER study: protocol for a multicentre, convergent, mixed-methods trial assessing the effectiveness of pulmonary rehabilitation programmes and the needs of informal carers of people with chronic respiratory diseases.BMJ open respiratory research · 2026Article
- Facing death in care: Nurses' lived experiences in the care of bedridden patients.Palliative & supportive care · 2026Article
- Caregiver burden reduction program among family caregivers of patients undergoing coronary artery bypass graft surgery: designing and evaluating.BMC nursing · 2025Article
- Application of Generative Artificial Intelligence Models for Accurate Prescription Label Identification and Information Retrieval for the Elderly in Northern East of Thailand.Journal of imaging · 2025Article
- Depression Onset After a Spouse's Cardiovascular Event.JAMA network open · 2024Article
- Psychometric testing of the caregiver contribution to self-care of coronary heart disease inventory.PloS one · 2024Article
- Uptake and Use of Care Companion, a Web-Based Information Resource for Supporting Informal Carers of Older People: Mixed Methods Study.JMIR aging · 2023Article
- Developing effective health coaches: Experience gained in a clinical trial of a health coach intervention.Patient education and counseling · 2023Article
- Resilience in Informal Caregivers of Patients with Heart Failure in China: Exploring Influencing Factors and Identifying the Paths.Psychology research and behavior management · 2023Article
- Testing the validation and reliability of the Caregiver-Patient Activation Measure (CG-PAM).PEC innovation · 2022Article
- Article
- Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association.Journal of the American Heart Association · 2022Article
- Caregiver Experiences and Roles in Care Seeking During COPD Exacerbations: A Qualitative Study.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2022Article
- Changes in Caregiver Personal Support Networks: Gender Differences and Effects on Health (CUIDAR-SE Study).International journal of environmental research and public health · 2021Article
- The efficacy of telenursing on caregiver burden among Iranian patients with heart failure: A randomized clinical trial.ARYA atherosclerosis · 2021Article
- The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews.The patient · 2021Article
- The Impact of Caregiving Burden on Mental Well-Being in Coronary Artery Bypass Graft Surgery Caregivers: The Mediatory Role of Perceived Social Support.International journal of environmental research and public health · 2021Article
- Article
- Relationships between informal caregiving, health and work in the Health and Employment After Fifty study, England.European journal of public health · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo assess the experiences of unpaid caregivers providing care to people with heart failure (HF) or chronic obstructive pulmonary disease (COPD) or coronary artery disease (CAD). ELIGIBILITY CRITERIA FOR SELECTING STUDIES: Inclusion was limited to English language studies in unpaid adult caregivers (>18 years), providing care for patients with HF, COPD or CAD. Studies that considered caregivers for any other diagnoses and studies undertaken in low-income and middle-income countries were excluded. Quality assessment of included studies was conducted by two authors. DATA ANALYSIS/SYNTHESIS: A results-based convergent synthesis was conducted.
resultsSearches returned 8026 titles and abstracts. 54 studies-21 qualitative, 32 quantitative and 1 mixed method were included. This totalled 26 453 caregivers who were primarily female (63%), with median age of 62 years. Narrative synthesis yielded six concepts related to caregiver experience: (1) mental health, (2) caregiver role, (3) lifestyle change, (4) support for caregivers, (5) knowledge and (6) relationships. There was a discordance between paradigms regarding emerging concepts. Four concepts emerged from qualitative papers which were not present in quantitative papers: (1) expert by experience, (2) vigilance, (3) shared care and (4) time.
conclusionCaregiving is life altering and complex with significant health implications. Health professionals should support caregivers who in turn can facilitate the recipient to manage their long-term condition. Further longitudinal research exploring the evolution of caregiver experiences over time of patients with chronic cardiopulmonary conditions is required. TRIAL REGISTRATION NUMBER: CRD42016053412.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.