ArticleJournal of the American Medical Informatics Association : JAMIA2018
OpenNotes and shared decision making: a growing practice in clinical transparency and how it can support patient-centered care.
Article in Journal of the American Medical Informatics Association : JAMIA, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Impact of online patient access to clinical notes on quality of care: a systematic review.BMJ quality & safety · 2026Pooled it
- Clinical Notes Contain Limited Documentation of Shared Decision Making for Colorectal Cancer Screening Decisions.Medical decision making : an international journal of the Society for Medical Decision Making · 2025Trial
- Effect of Notes' Access and Complexity on OpenNotes' Utility.Applied clinical informatics · 2022Trial
- Comparing Characteristics of Patients Who Connect Their iPhones to an Electronic Health Records System Versus Patients Who Connect Without Personal Devices: Cohort Study.Journal of medical Internet research · 2019Trial
- An Evaluation of AI-Generated Clinical Notes in the OpenNotes Era: A Thematic Analysis of Clinician Discourse.Journal of evaluation in clinical practice · 2026Article
- Recommendations for sharing cardiovascular implantable electronic device data with patients based on clinician interviews.Heart rhythm O2 · 2026Article
- Modernizing data and data science infrastructure as a strategic asset for cancer center.npj health systems · 2026Review
- Shared Decision-Making Tools Implemented in the Electronic Health Record: Scoping Review.Journal of medical Internet research · 2025Article
- Development and preliminary evaluation of a decision coach training module for nurses in Norway.BMC nursing · 2025Article
- Patient-Generated Collections for Organizing Electronic Health Record Data to Elevate Personal Meaning, Improve Actionability, and Support Patient-Health Care Provider Communication: Think-Aloud Evaluation Study.JMIR human factors · 2025Article
- Perspectives from neuro-oncology providers on patient access to electronic records: a survey study.CNS oncology · 2024Article
- Efficient healthcare with large language models: optimizing clinical workflow and enhancing patient care.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents.Journal of participatory medicine · 2024Article
- Experiences of Patients With Mental Health Issues Having Web-Based Access to Their Records: National Patient Survey.JMIR mental health · 2024Article
- Partnering with Patients and Families to Improve Diagnostic Safety through the OurDX Tool: Effects of Race, Ethnicity, and Language Preference.Applied clinical informatics · 2023Article
- New Ways for Patients to Make Sense of Their Electronic Health Record Data Using the Discovery Web Application: Think-Aloud Evaluation Study.JMIR formative research · 2023Article
- Article
- The Role of Access Type and Age Group in the Breadth of Use of Patient Portals: Observational Study.Journal of medical Internet research · 2022Observational
- SEE-Diabetes, a patient-centered diabetes self-management education and support for older adults: Findings and information needs from patients' perspectives.Primary care diabetes · 2022Article
- Artificial Intelligence and Medical Humanities.The Journal of medical humanities · 2022Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objective: Prior studies suggest inviting patients to read their visit notes (OpenNotes) has important benefits for patient engagement. We utilized survey data to investigate our hypothesis that patients who read more notes would report greater shared decision making (SDM). Materials and Methods: Our survey focused on the safety and quality implications of OpenNotes. 24 722 patients at an urban healthcare organization were invited to complete the survey, which included an item assessing the number of notes read and the CollaboRATE scale to measure SDM. We used log-binomial regression to estimate the relative probability of top CollaboRATE scores across number of notes read while controlling for several covariates. Results: 6913 patients responded (28% response rate). Patients reading 4+ clinical notes in the past 12 months were 17% more likely to have top CollaboRATE scores when compared to patients who had not read a note in the previous 12 months (RR: 1.17, 95%CI: 1.04-1.32). Discussion: There is a clear relationship between what SDM requires and the transparency OpenNotes provides. Access to clinicians' notes can support the SDM model, which relies on efficient information exchange between clinicians and well-informed patients. Conclusion: Our study showed evidence of a relationship between note reading and perceived SDM. Implementation of SDM is likely to expand, given its association with improved patient satisfaction, adherence, and medical decision making. Findings from this study highlight OpenNotes as a policy that institutions can implement as a facilitator of SDM and a manifestation of their commitment to patient autonomy and transparency.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.