ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2019
Patients' experience of lung cancer care coordination: a quantitative exploration.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed, 29 citations in OpenAlex.
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- Exploring Motives Behind Ideal Melanoma Survivorship Care Plans With Multiple Stakeholders: A Cocreation Study.JMIR cancer · 2025Article
- The impact of brain cancer care coordinators on healthcare utilization and outcomes in patients with glioblastoma.Neuro-oncology practice · 2024Article
- Content validity of patient-reported measures evaluating experiences of the quality of transitions in healthcare settings-a scoping review.BMC health services research · 2024Article
- Patient Perceptions of Care Coordination during Neoadjuvant Therapy for Gastrointestinal Cancers: A Mixed Methods Analysis.Journal of gastrointestinal cancer · 2024Article
- Associations between healthcare costs and care experiences among older adults with and without cancer.Journal of geriatric oncology · 2023Article
- Social return on investment economic evaluation of supportive care for lung cancer patients in acute care settings in Australia.BMC health services research · 2022Article
- Qualitative analysis of cancer care experiences among rural cancer survivors and caregivers.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2022Article
- Effect of Intelligent Medical Management Platform Combined with Perioperative Detailed Nursing on Cognitive Ability, Postoperative Complications, and Quality of Life of Patients Undergoing Hysterectomy.Computational and mathematical methods in medicine · 2022Article
- Patient's treatment burden related to care coordination in the field of respiratory diseases.Breathe (Sheffield, England) · 2021Review
- Influence of respiratory function training under the mode of mutual-assisted patients on postoperative pulmonary infection and immune function on lung cancer.American journal of translational research · 2021Article
- Assessing Patients' Perceptions of Cancer Care Coordination in a Community-Based Setting.JCO oncology practice · 2020Article
- Development and psychometric evaluation of a questionnaire to measure cancer patients' perception of care coordination.BMC health services research · 2020Article
- Codelivery of DOX and siRNA by folate-biotin-quaternized starch nanoparticles for promoting synergistic suppression of human lung cancer cells.Drug delivery · 2019Article
- Qualitative Findings From a Survey on Patient Experiences and Satisfaction with Lung Cancer Screening.Cancer control : journal of the Moffitt Cancer CenterArticle
Corrections and comments
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Authors and funding
7 authors at 5 institutions in 1 country.
Funding
Abstract
purposeImproving the coordination of care for people with lung cancer is a health priority. This study aimed to tailor an existing care coordination survey for a lung cancer population, investigate coordination experiences for patients who had received hospital-based treatment and identify any factors that may be associated with poor care coordination.
methodsWe conducted a cross-sectional survey of lung patients within two tertiary hospitals in Sydney, Australia. The Cancer Care Coordination Questionnaire for Patients (CCCQ-P) is a psychometrically valid and reliable survey originally developed for colorectal cancer. We pilot tested a survey adaptation with lung cancer patients, support group members and medical specialists (n = 49). A revised survey was mailed to eligible patients via their medical specialist.
resultsFifty-three of 118 eligible participants (45%) completed the CCCQ-P; most had early-stage disease and were about 70 years old. Overall, participants reported positive experiences of care coordination (mean total score 78.1), with high scores on communication and navigation subscales. The most problematic areas related to administrative aspects of care coordination and communication and information provision. Two patient groups (those residing in regional and rural areas, or no experience with the health system prior to diagnosis) reported significantly lower scores on the navigation subscale.
conclusionsThis study found that lung cancer patients' experience of care coordination was positive, but highlighted the need for strategies to assist patients living in rural areas, and those with no experience of the health care system. The CCCQ-P survey instrument can be used in future lung cancer studies.
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