Evidence map›Paper›PMID 29980173›Full record

ArticleBMC medical research methodology2018

The importance of including aliases in data linkage with vulnerable populations.

Holly Tibble, Hsei Di Law, Matthew J Spittal, Rosemary Karmel, Rohan Borschmann, Katie Hail-Jares, Laura A Thomas, Stuart A Kinner

Open access · goldAbstract read
In one paragraph

Article in BMC medical research methodology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.5field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 16 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 2 countries.

Holly TibbleCentre for Mental Health, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Australia. hollytibble@gmail.com.ORCID 0000-0001-7169-4087
Hsei Di LawData Linkage Unit, Australian Institute of Health and Welfare, Canberra, Australia.
Matthew J SpittalCentre for Mental Health, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Australia.
Rosemary KarmelData Linkage Unit, Australian Institute of Health and Welfare, Canberra, Australia.
Rohan BorschmannCentre for Mental Health, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Australia.
Katie Hail-JaresGriffith Criminology Institute, Griffith University, Brisbane, Australia.
Laura A ThomasCentre for Health Policy, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Australia.
Stuart A KinnerCentre for Mental Health, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Australia.
The University of Melbourne · AUAustralian Institute of Health and Welfare · AUGriffith University · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundRecords pertaining to individuals whose identity cannot be verified with legal documentation may contain errors, or be incorrect by intention of the individual. Probabilistic data linkage, especially in vulnerable populations where the incidence of such records may be higher, must be considerate of the usage of these records.

methodsA data linkage was conducted between Queensland Youth Justice records and the Australian National Death Index. Links were assessed to determine how often they were made using the unverified (alias) records that would not have been made in their absence (i.e. links that were not also made using solely verified records). Anomalies in the linked records were investigated in order to make evaluations of the sensitivity and specificity of the linkage, compared to the links made using only verified records.

resultsFrom links made using verified records only, 1309 deaths were identified (2.6% of individuals). Using alias records in addition, the number of links increased by 16%. Links made using alias records only were more common in females, and those born after 1985. Different records belonging to the same individual in the justice dataset did not link to different death records, however there were instances of the same death record linking to multiple cohort individuals.

conclusionsThe inclusion of aliases in data linkage in youths involved in the justice system increased mortality ascertainment without any discernible increase in false positive matches. We therefore conclude that alias records should be included in data linkage procedures in order to avoid biased attenuation of ascertainment in vulnerable populations, leading to the concealment of health inequality.

Indexed as

AdolescentAustraliaBirth CertificatesCohort StudiesDeath CertificatesFemaleHumansInformation Storage and RetrievalInformation SystemsMaleRecordsReproducibility of ResultsSocial JusticeVulnerable PopulationsAliasesData linkageIndigenousJusticeProbabilisticVulnerableYouth

Identifiers

PMID29980173
PMCPMC6035442
OpenAlexW2834082622

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.